Edinburgh Research Explorer

The other side of the coin: Harm due to the non-use of health-related data

Research output: Contribution to journalArticle

Related Edinburgh Organisations

Access status

Open

Documents

  • Download as Adobe PDF

    Final published version, 612 KB, PDF-document

    License: Creative Commons: Attribution-NonCommercial-NoDerivatives (CC BY-NC-ND)

Original languageEnglish
Pages (from-to)43-51
Number of pages9
JournalInternational journal of medical informatics
Volume97
Early online date24 Sep 2016
DOIs
StatePublished - Jan 2017

Abstract

This article uses an international case study approach to explore why data non-use is difficult to ascertain, the sources and types of health-related data non-use, its implications for citizens and society and some of the reasons it occurs. It does this by focussing on issues with clinical care records, research data and governance frameworks and associated examples of non-use.

Research areas

  • data, health research, privacy, harm, governance

Download statistics

No data available

ID: 28038956