Everyday Life with a Ventilator. Sharing the findings of the HAVEN study.

Jessica Maclaren (Organiser)

Activity: Participating in or organising an event typesPublic Engagement – Public lecture/debate/seminar


Everyday Life With A Ventilator. Sharing the findings of the HAVEN study.

A half-day knowledge exchange event, to discuss findings from the HAVEN study, which explored the experiences of people with motor neurone disease or muscular dystrophy, who live at home with mechanical ventilation. Following the discussion there was a screening of the documentary film I Am Breathing. The event was attended by patients, families, members of staff and charity representatives.
Period4 Aug 2016
Event typeOther
LocationEdinburgh, United Kingdom


  • home ventilation
  • motor neurone disease
  • duchenne muscular dystrophy
  • palliative care
  • Long-term conditions
  • integration of health and social care
  • non-invasive ventilation