Description
Information Saves Lives: Enabling a Healthy Flow of Data in EuropeKeynote Panel at the HIMSS Europe Conference 2020
Speakers Claudia Pagliari (University of Edinburgh); Mark Davies (IBM UK), Jyrki Katainen (Finnish Government)
Programme summary:
Boosted by the fast development of new AI capabilities, data has been called the new currency in health. It is at the core of our every effort to improve outcomes while ensuring the sustainability of our health systems. Data literally saves lives: informing pathways, personalizing health and care, predicting and preventing conditions, managing populations’ health, moving from volume to value, and fueling research and innovation. However, while the main defining quality of a currency is fluidity, health data remains too siloed to unleash its full potential: integrating health, social and lifestyle data, and paving the way for a new set of services that are based on fair data and transparency of services. While the amount of data continues to grow exponentially and become more and more personal, this session will discuss strategies to promote a healthy flow of data in Europe and balance our need to protect privacy with our mission to save lives
Learning Objectives
Understand the necessity to establish rules for citizen-driven, fair data ecosystems.
Learn from the European GDPR experience and how Finland harnessed this opportunity to strengthen users’ trust.
Discover the Nordic and European approaches to regulating and enabling secondary use of data.
| Period | 8 Sept 2020 |
|---|---|
| Event title | HIMSS Europe 2020 - Health 2.0: European Health Conference and Exhibition |
| Event type | Conference |
| Location | Helsinki, FinlandShow on map |
| Degree of Recognition | International |
Keywords
- Health Informatics
- Data Science
- Data Sharing
- Ethics
- Information Governance
- Culture
- International collaboration
- Platforms
- Finland
- Digital Health
- eHealth
Documents & Links
Related content
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Activities
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Assessing European countries' capacities for integrated digital surveillance systems
Activity: Consultancy types › Consultancy
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Contesting AI Explanations in the Health Sector
Activity: Academic talk or presentation types › Invited talk
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Balancing Hype and Reality in Medical AI. What Evidence-Based Medicine has to offer for a useful, sustainable and fair digital health future
Activity: Academic talk or presentation types › Invited talk
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Visioning the future: Governance pathways to better health futures
Activity: Participating in or organising an event types › Participation in workshop, seminar, course
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Artificial Intelligence in global health - engaging technological and social innovations
Activity: Academic talk or presentation types › Invited talk
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Member Ethics Task Group - Data Intelligence Network, Scotland
Activity: Consultancy types › Contribution to the work of national or international committees and working groups
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Data ethics in a pandemic. Navigating the dilemmas and complexities in a changing public health environment
Activity: Academic talk or presentation types › Invited talk
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What's Happening in Global eHealth: Trends and developments during COVID19
Activity: Academic talk or presentation types › Invited talk
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National University of Singapore
Activity: Visiting an external institution types › Research and Teaching at External Organisation
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Scottish Government Working Group on Information Assurance, Governance and Security
Activity: Consultancy types › Contribution to the work of national or international committees and working groups
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World Health Organisation Roster of Experts in Digital Health
Activity: Consultancy types › Contribution to the work of national or international committees and working groups
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Technology-enabled work in the Pandemic: What have we learned?
Activity: Academic talk or presentation types › Invited talk
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Considering Privacy and Developing Robust and Ethical, Data without Bias
Activity: Academic talk or presentation types › Invited talk
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Vaccine passports, digital identity and the global implications of health data sharing
Activity: Academic talk or presentation types › Invited talk
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Quantum Supremacy in the Age of the Pandemic: Ethical Dilemmas
Activity: Academic talk or presentation types › Invited talk
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External Examiner, MSc in Health Data Science, University of Manchester
Activity: Examination types › External Examiner or Assessor
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Projects
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Research output
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Public Acceptability of Data Sharing Between the Public, Private and Third Sectors for Research Purposes
Research output: Book/Report › Book
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The ethics and value of contact tracing apps: International Insights and Implications for Scotland
Research output: Contribution to journal › Editorial › peer-review
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The Opportunities and Ethics of Big Data
Research output: Book/Report › Commissioned report
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Status of Health Information Exchange: A Comparison of Six Countries
Research output: Contribution to journal › Article › peer-review
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Digital Health and Pandemics: What Covid-19 Reveals About the Challenges
Research output: Contribution to specialist publication › Article
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Public responses to the sharing and linkage of health data for research purposes: a systematic review and thematic synthesis of qualitative studies
Research output: Contribution to journal › Article › peer-review
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Health Data Dilemmas: Ethical Benefits and Risks: (Data Ethics, AI and Responsible Innovation)
Research output: Non-textual form › Digital or Visual Products
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Legal and ethico-legal issues in e-healthcare research projects in the UK
Research output: Contribution to journal › Article › peer-review