Privacy, Autonomy and Power in a Smart, Connected World

Activity: Academic talk or presentation typesInvited talk


In this keynote speech, delivered at the Health Privacy Summit in Washington DC, Prof Claudia Pagliari explores the evolving health data ecosystem and its many players, including research agencies, governments, global technology companies, digital health innovators and commercial data brokers. She reflects on the increasing ability of key players to link disparate data sources through the development of integrative research infrastructures, and via commercial mergers and acquisitions, which place ever greater power in the hands of a few stakeholders. She considers the growing sophistication of analytical techniques such as artificial intelligence and emotion mining, how social machines and responsive robotics are blurring the lines between real and virtual worlds, and the ethical issues these raise for trust and autonomy. She uses a number of metaphors to describe the convergence of data, knowledge and power, including Bentham's Panopticon, the Oracle of Delphi and even God, to illustrate why anticipating these possible digital futures is essential if action is to be taken now to protect citizens' rights, freedoms and democracy.
Period7 Jun 2016
Held atGlobal Health Academy
Degree of RecognitionInternational


  • Data Ethics
  • Big Data
  • Privacy
  • Human Rights
  • Centralisation of Power
  • Corporate Governance
  • Research Ethics
  • Innovation
  • Analytics
  • Artificial Intelligence
  • Emotion mining
  • Robots
  • Human-Machine Interface
  • Social machines
  • Data Linkage
  • Autonomy
  • Digital Futures
  • Information Governance
  • Mergers and Acquisitions
  • Research Infrastructures