Description
This was a public event designed to discuss and debate questions around health data ownership, specifically genetic data, and who should get to use it.Dr Pagliari's talk was titled:
Who Owns My Genome? "Show Me The Money"
It examined popular analogies, such as data being 'the new oil' and the scramble to cash in on this new asset class, forcing participants to think about where value is being realised and in whose interest.
| Period | 7 Jul 2016 |
|---|---|
| Event type | Workshop |
| Location | Edinburgh, City of Edinburgh, United Kingdom, United KingdomShow on map |
| Degree of Recognition | National |
Keywords
- Bioethics
- Data Ethics
- Genetics
- Privacy
- Ownership
- Rights
- Digital Health
- eHealth
- Genomics
Documents & Links
Related content
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Research output
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Should Individuals Share Their Genomic Profiles? Researchers and patient advocates wrestle with privacy and ethical concerns
Research output: Contribution to journal › Comment/debate
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Legal and ethico-legal issues in e-healthcare research projects in the UK
Research output: Contribution to journal › Article › peer-review
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Transparency of genetic testing services for 'health, wellness and lifestyle': analysis of online pre-purchase information for UK consumers
Research output: Contribution to journal › Article › peer-review
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Health Data Dilemmas: Ethical Benefits and Risks: (Data Ethics, AI and Responsible Innovation)
Research output: Non-textual form › Digital or Visual Products
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Transparency in the marketing of direct-to-consumer genetic tests
Research output: Contribution to conference › Abstract › peer-review
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Projects
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Ethics and Governance of Digital Health
Project: Research
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Activities
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Electronic Genetic Profiling: Society and Ethics
Activity: Other activity types › Types of Public engagement and outreach - Festival/Exhibition