Who owns my genome? A public debate

Pagliari, C. (Invited speaker)

Activity: Participating in or organising an event typesPublic Engagement – Public lecture/debate/seminar

Description

This was a public event designed to discuss and debate questions around health data ownership, specifically genetic data, and who should get to use it.
Dr Pagliari's talk was titled:
Who Owns My Genome? "Show Me The Money"
It examined popular analogies, such as data being 'the new oil' and the scramble to cash in on this new asset class, forcing participants to think about where value is being realised and in whose interest.
Period7 Jul 2016
Event typeWorkshop
LocationEdinburgh, City of Edinburgh, United Kingdom, United Kingdom
Degree of RecognitionNational

Keywords

  • Bioethics
  • Data Ethics
  • Genetics
  • Privacy
  • Ownership
  • Rights
  • Digital Health
  • eHealth
  • Genomics