Exploring the provision of supportive care for patients with severe, potentially life-threatening COPD in Malaysia: a qualitative study of gaps and barriers, facilitators and solutions from the perspective of patients, health care providers and policy makers

  • Ee Ming Khoo (Creator)
  • Jayakayatri Jeevajothi Nathan (Creator)
  • Su May Liew (Creator)
  • Sylvia McCarthy (Creator)
  • Zee Nee Lim (Creator)
  • Nik Sherina Nik Hanafi (Creator)
  • Norita Hussein (Creator)
  • Hilary Pinnock (Creator)
  • Moni Choudhury (Data Manager)



24 pdf files (22 pdf files: de-identified transcripts; 1 pdf file contains patients' socio-demographics and personal profile, and 1 pdf contains healthcare providers' information)
## Access ##
This dataset is held in the Edinburgh DataVault, directly accessible only to authorised University of Edinburgh users. Academic researchers may request access, and will be required to sign a data sharing agreement.


This study comprises of two main datasets that aims to explore the views and healthcare experiences of patients in Malaysia with severe, potentially life-threatening Chronic Obstructive Pulmonary Disease (COPD). It also aims to explore the views and experiences of health care providers and policy makers and the services that they provide (or not) with regards to supportive and palliative care for these patients. The findings were intended to inform how the current service provision gap for this patient group could be addressed in order to meet their unmet needs. It has the potential to influence Malaysian palliative care guidelines and, ultimately, the quality of care provided to these patients.
Date made available20 Aug 2021
PublisherEdinburgh DataVault
Date of data production1 Oct 2018 - 30 Jun 2021
Geographical coverageMalaysia

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