Views on sharing mental and physical health data among people with and without experience of mental illness



This dataset contains responses from an online survey of 2187 participants primarily located in the UK. All participants stated that they had used the UK National Health Service (NHS) at some time in their lives. The data were collected between December 2018 and August 2019. Participants' views on data sharing - this dataset contains information about people's willingness to share mental and physical health data for research purposes. It also includes information on willingness to share other types of data, such as financial information. The dataset includes participants' responses to questions relating to mental health data sharing, including the trustworthiness of organisations which use such data, how much the presence of different governance measures (such as deidentification, opt-out, etc.) would alter their views, and whether they would be less likely to access NHS mental health services if they knew their data might be shared with researchers. Participants' satisfaction and interaction with UK mental and physical health services - the dataset includes information regarding participants' views on and interaction with NHS services. This includes ratings of satisfaction at first contact and in the previous 12 months, frequency of use, and type of treatment received. Information about participants - the dataset includes information about participants' mental and physical health, including whether or not they have experience with specific mental health conditions, and how they would rate their mental and physical health at the time of the survey. There is also basic demographic information about the participants (e.g. age, gender, location etc.).

Data Citation

Kirkham, Elizabeth; Lawrie, Stephen; Crompton, Catherine; Iveson, Matthew; Beange, Iona; Chan, Stella; McIntosh, Andrew; Fletcher-Watson, Sue. (2022). Views on sharing mental and physical health data among people with and without experience of mental illness, 2018-2019 [dataset]. University of Edinburgh. Centre for Clinical Brain Sciences..
Date made available11 Jul 2022
PublisherEdinburgh DataShare
Temporal coverageDec 2018 - Aug 2019
Geographical coverageUK,UNITED KINGDOM,UK

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