Advanced Kidney Disease Patient Portal: Implementation and Evaluation with Haemodialysis Patients

Ramsay Meikleim, Karen Stevenson, Sabine Richarz, David Kingsmore, Matt-Mouley Bouamrane, Mark Dunlop, Peter C Thomson

Research output: Chapter in Book/Report/Conference proceedingConference contribution

Abstract

Patients on haemodialysis face complex care pathways, a high treatment burden and lower quality-of-life. Working with multidisciplinary domain experts, we have conducted several iterative development cycles to design, develop and evaluate a portal for patients on haemodialysis that can help them better understand and navigate their care pathways. A key functionality of the portal is to improve data and information sharing with clinicians, including on key aspects of quality-of-life through Patients Reported Outcome Measures. A case study was conducted with multidisciplinary experts and patients in the NHS Greater Glasgow and Clyde health board (Scotland), using interviews combined with the System Usability Scale (n = 26). Patients’ feedback and system use observations were used to further refine the system design requirements and functionalities. Key lessons include: a wide preference for tablet-based input vs paper, identification of case-specific accessibility issues and situational impairment, benefits of self-completed digital data collection in overcoming such issues and promoting patient independence and privacy, with considerations for maintaining perceived value and engagement with such systems and when to offer alternatives.
Original languageEnglish
Title of host publicationHuman-Computer Interaction – INTERACT 2021.
Subtitle of host publicationLecture Notes in Computer Science
PublisherSpringer, Cham
Pages175-196
VolumeLNCS 12933
ISBN (Electronic)978-3-030-85616-8
ISBN (Print)978-3-030-85615-1
DOIs
Publication statusPublished - 26 Aug 2021
EventHuman-Computer Interaction – INTERACT 2021: 18th IFIP TC 13 International Conference, Bari, Italy, August 30 – September 3, 2021, - Bari, Italy
Duration: 30 Aug 20213 Sep 2021
https://www.interact2021.org/

Conference

ConferenceHuman-Computer Interaction – INTERACT 2021
Abbreviated title INTERACT 2021
Country/TerritoryItaly
CityBari
Period30/08/213/09/21
Internet address

Keywords

  • Chronic diseases
  • Patient Portals
  • Co-Design
  • Digital Health

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