Advanced Kidney Disease Patient Portal: Implementation and Evaluation with Haemodialysis Patients

Ramsay  Meikleim; Karen  Stevenson; Sabine Richarz; David Kingsmore; Matt-Mouley Bouamrane; Mark Dunlop; Peter C  Thomson

doi:10.1007/978-3-030-85616-8_12

Advanced Kidney Disease Patient Portal: Implementation and Evaluation with Haemodialysis Patients

Ramsay Meikleim, Karen Stevenson, Sabine Richarz, David Kingsmore, Matt-Mouley Bouamrane, Mark Dunlop, Peter C Thomson

Research output: Chapter in Book/Report/Conference proceeding › Conference contribution

Abstract

Patients on haemodialysis face complex care pathways, a high treatment burden and lower quality-of-life. Working with multidisciplinary domain experts, we have conducted several iterative development cycles to design, develop and evaluate a portal for patients on haemodialysis that can help them better understand and navigate their care pathways. A key functionality of the portal is to improve data and information sharing with clinicians, including on key aspects of quality-of-life through Patients Reported Outcome Measures. A case study was conducted with multidisciplinary experts and patients in the NHS Greater Glasgow and Clyde health board (Scotland), using interviews combined with the System Usability Scale (n = 26). Patients’ feedback and system use observations were used to further refine the system design requirements and functionalities. Key lessons include: a wide preference for tablet-based input vs paper, identification of case-specific accessibility issues and situational impairment, benefits of self-completed digital data collection in overcoming such issues and promoting patient independence and privacy, with considerations for maintaining perceived value and engagement with such systems and when to offer alternatives.

Original language	English
Title of host publication	Human-Computer Interaction – INTERACT 2021.
Subtitle of host publication	Lecture Notes in Computer Science
Publisher	Springer
Pages	175-196
Volume	LNCS 12933
ISBN (Electronic)	978-3-030-85616-8
ISBN (Print)	978-3-030-85615-1
DOIs	https://doi.org/10.1007/978-3-030-85616-8_12
Publication status	Published - 26 Aug 2021
Event	Human-Computer Interaction – INTERACT 2021: 18th IFIP TC 13 International Conference, Bari, Italy, August 30 – September 3, 2021, - Bari, Italy Duration: 30 Aug 2021 → 3 Sept 2021 https://www.interact2021.org/

Conference

Conference	Human-Computer Interaction – INTERACT 2021
Abbreviated title	INTERACT 2021
Country/Territory	Italy
City	Bari
Period	30/08/21 → 3/09/21
Internet address	https://www.interact2021.org/

Keywords / Materials (for Non-textual outputs)

Chronic diseases
Patient Portals
Co-Design
Digital Health

Access to Document

10.1007/978-3-030-85616-8_12Licence: All Rights Reserved

Meiklem et al. v1.0-CR-FINALAccepted author manuscript, 415 KB

Cite this

Meikleim, R., Stevenson, K., Richarz, S., Kingsmore, D., Bouamrane, M.-M., Dunlop, M., & Thomson, P. C. (2021). Advanced Kidney Disease Patient Portal: Implementation and Evaluation with Haemodialysis Patients. In Human-Computer Interaction – INTERACT 2021. : Lecture Notes in Computer Science (Vol. LNCS 12933, pp. 175-196). Springer. https://doi.org/10.1007/978-3-030-85616-8_12

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abstract = "Patients on haemodialysis face complex care pathways, a high treatment burden and lower quality-of-life. Working with multidisciplinary domain experts, we have conducted several iterative development cycles to design, develop and evaluate a portal for patients on haemodialysis that can help them better understand and navigate their care pathways. A key functionality of the portal is to improve data and information sharing with clinicians, including on key aspects of quality-of-life through Patients Reported Outcome Measures. A case study was conducted with multidisciplinary experts and patients in the NHS Greater Glasgow and Clyde health board (Scotland), using interviews combined with the System Usability Scale (n = 26). Patients{\textquoteright} feedback and system use observations were used to further refine the system design requirements and functionalities. Key lessons include: a wide preference for tablet-based input vs paper, identification of case-specific accessibility issues and situational impairment, benefits of self-completed digital data collection in overcoming such issues and promoting patient independence and privacy, with considerations for maintaining perceived value and engagement with such systems and when to offer alternatives.",

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author = "Ramsay Meikleim and Karen Stevenson and Sabine Richarz and David Kingsmore and Matt-Mouley Bouamrane and Mark Dunlop and Thomson, \{Peter C\}",

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Meikleim, R, Stevenson, K, Richarz, S, Kingsmore, D, Bouamrane, M-M, Dunlop, M & Thomson, PC 2021, Advanced Kidney Disease Patient Portal: Implementation and Evaluation with Haemodialysis Patients. in Human-Computer Interaction – INTERACT 2021. : Lecture Notes in Computer Science. vol. LNCS 12933, Springer, pp. 175-196, Human-Computer Interaction – INTERACT 2021, Bari, Italy, 30/08/21. https://doi.org/10.1007/978-3-030-85616-8_12

Advanced Kidney Disease Patient Portal: Implementation and Evaluation with Haemodialysis Patients. / Meikleim, Ramsay ; Stevenson, Karen ; Richarz, Sabine et al.
Human-Computer Interaction – INTERACT 2021. : Lecture Notes in Computer Science. Vol. LNCS 12933 Springer, 2021. p. 175-196.

Research output: Chapter in Book/Report/Conference proceeding › Conference contribution

TY - GEN

T1 - Advanced Kidney Disease Patient Portal

T2 - Human-Computer Interaction – INTERACT 2021

AU - Meikleim, Ramsay

AU - Stevenson, Karen

AU - Richarz, Sabine

AU - Kingsmore, David

AU - Bouamrane, Matt-Mouley

AU - Dunlop, Mark

AU - Thomson, Peter C

PY - 2021/8/26

Y1 - 2021/8/26

N2 - Patients on haemodialysis face complex care pathways, a high treatment burden and lower quality-of-life. Working with multidisciplinary domain experts, we have conducted several iterative development cycles to design, develop and evaluate a portal for patients on haemodialysis that can help them better understand and navigate their care pathways. A key functionality of the portal is to improve data and information sharing with clinicians, including on key aspects of quality-of-life through Patients Reported Outcome Measures. A case study was conducted with multidisciplinary experts and patients in the NHS Greater Glasgow and Clyde health board (Scotland), using interviews combined with the System Usability Scale (n = 26). Patients’ feedback and system use observations were used to further refine the system design requirements and functionalities. Key lessons include: a wide preference for tablet-based input vs paper, identification of case-specific accessibility issues and situational impairment, benefits of self-completed digital data collection in overcoming such issues and promoting patient independence and privacy, with considerations for maintaining perceived value and engagement with such systems and when to offer alternatives.

AB - Patients on haemodialysis face complex care pathways, a high treatment burden and lower quality-of-life. Working with multidisciplinary domain experts, we have conducted several iterative development cycles to design, develop and evaluate a portal for patients on haemodialysis that can help them better understand and navigate their care pathways. A key functionality of the portal is to improve data and information sharing with clinicians, including on key aspects of quality-of-life through Patients Reported Outcome Measures. A case study was conducted with multidisciplinary experts and patients in the NHS Greater Glasgow and Clyde health board (Scotland), using interviews combined with the System Usability Scale (n = 26). Patients’ feedback and system use observations were used to further refine the system design requirements and functionalities. Key lessons include: a wide preference for tablet-based input vs paper, identification of case-specific accessibility issues and situational impairment, benefits of self-completed digital data collection in overcoming such issues and promoting patient independence and privacy, with considerations for maintaining perceived value and engagement with such systems and when to offer alternatives.

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KW - Patient Portals

KW - Co-Design

KW - Digital Health

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BT - Human-Computer Interaction – INTERACT 2021.

PB - Springer

Y2 - 30 August 2021 through 3 September 2021

ER -

Advanced Kidney Disease Patient Portal: Implementation and Evaluation with Haemodialysis Patients

Abstract

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Keywords / Materials (for Non-textual outputs)

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