Collecting resilience points for a smooth transition to adult healthcare services: co-creating a playful resource for Spina Bifida.

Sharon Levy, Stephanie (Charley) Farley, Iona Campbell

Research output: Contribution to journalArticlepeer-review

Abstract / Description of output

Background:
The transition of young people with a disability or a chronic health condition, from paediatric to adult focused health and social care services, in Scotland, is known to be difficult. There is a significant body of evidence to suggest that a transition should start early, be holistic and inclusive, as well as structured to build essential capabilities and promote resilience. The nurse led project, reported here, was set to create a playful mechanism for meaningful interactions between young people, families and healthcare professionals involved in the transfer of care.
Methodology:
Salutogenic theory and efforts to enhance a ‘sense of coherence’ guided developments of a collaborative boardgame entitled ‘The Young Heroes’. Through participatory design and the ecological framing of resilience, the captured lived experience of adults with spina bifida who already transitioned to adult care, was used to enhance developments. Playtests with a range of stakeholders was used to further hone and validate the tool.
Results:
Seeking to co-create a tool to support effective transitions, enabled a team to craft and test a transition game that is easily accessible, inclusive, and sufficiently adaptable to fit different settings, communities and cultures. The open licence grants others a free access to download, play and adapt this game so it could be further used, enhanced and validated.
Original languageEnglish
Article number100036
Number of pages5
JournalHealth Care Transitions
Volume2
DOIs
Publication statusPublished - 13 Dec 2023

Keywords / Materials (for Non-textual outputs)

  • Transition
  • Transfer of care
  • Spina Bifida
  • Resilience
  • Participatory Design
  • Serious Games

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