Collection and protection of genomic data

Research output: Chapter in Book/Report/Conference proceedingChapter (peer-reviewed)peer-review

Abstract

However laudable the growing collection and use of genomic data may be from medico-scientific, economic, and social viewpoints, many people worry about the impact of this activity – if not about the nature of genomic data itself – on their privacy and the privacy of others. Arguably, privacy concerns have only intensified in recent years in the midst of deeper penetration of communication networks, advances in sequencing technology and information technology infrastructure (e.g. cloud computing), direct-to-consumer genetic testing, proliferation of systems such as artificial intelligence, and increasing commercial access to health-related patient data (Dove et al., 2017; Dove and Phillips, 2015).
Original languageEnglish
Title of host publicationHandbook of Genomics, Health and Society
EditorsS Gibbon, B Prainsack, S Hilgartner, J Lamoreaux
Place of PublicationLondon
PublisherRoutledge
Pages161-168
Number of pages8
ISBN (Electronic)9781315451688
Publication statusPublished - 8 Apr 2018

Keywords

  • law
  • genomics
  • data protection
  • privacy
  • personal data
  • health data

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