Conducting Ethical, Co-produced Research with and for Autistic Individuals with Eating Disorders: Best Practice Guidelines

Emy Nimbley; Ellen  Maloney; Karri Gillespie-Smith; Helen Sharpe; Kyle Buchan; Isla Whateley; Bryanna Lazich; Ollie Booth; Tasha Suratwala; Julie-Anne Baker; Casper Temples; Nix Renton; Emily Nuttall; Jessica Bragg; Harriet Darley; Lin Fidgin; Laura Campbell; Alison Shepherd; Jess Kerr-Gaffney; Kate Tchanturia; Sarah Kettley; Michelle Sader; Gordon Waiter; B. Choat; Joseph Long; Fiona Duffy

Conducting Ethical, Co-produced Research with and for Autistic Individuals with Eating Disorders: Best Practice Guidelines

Emy Nimbley^*, Ellen Maloney, Karri Gillespie-Smith, Helen Sharpe, Kyle Buchan, Isla Whateley, Bryanna Lazich, Ollie Booth, Tasha Suratwala, Julie-Anne Baker, Casper Temples, Nix Renton, Emily Nuttall, Jessica Bragg, Harriet Darley, Lin Fidgin, Laura Campbell, Alison Shepherd, Jess Kerr-Gaffney, Kate TchanturiaSarah Kettley, Michelle Sader, Gordon Waiter, B. Choat, Joseph Long, Fiona Duffy

^*Corresponding author for this work

Research output: Non-textual form › Web publication/site

Abstract / Description of output

The Best Practice Guidelines were developed as part of our first work stream at EDAC. They are designed to provide guidance to research teams on how to produce co-produced research with and for Autistic people with eating disorders. Co-production refers to researchers and community members working together as equal partners from the beginning of the research process. The belief underpinning these guidelines is that meaningful and impactful research can only be developed in partnership with the community that is most affected by it. We hope to support researchers in the field to realise the benefits of co-production by addressing concerns about historical research and barriers to this process.

Original language	English
Publication status	Published - 27 Feb 2024

Keywords / Materials (for Non-textual outputs)

ethical co-production
Co-Production
eating disorders
Autism
guideline
best practice
Collaborative research
EDAC

Cite this

Nimbley, E., Maloney, E., Gillespie-Smith, K., Sharpe, H., Buchan, K., Whateley, I., Lazich, B., Booth, O., Suratwala, T., Baker, J.-A., Temples, C., Renton, N., Nuttall, E., Bragg, J., Darley, H., Fidgin, L., Campbell, L., Shepherd, A., Kerr-Gaffney, J., ... Duffy, F. (2024). Conducting Ethical, Co-produced Research with and for Autistic Individuals with Eating Disorders: Best Practice Guidelines. Web publication/site

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abstract = "The Best Practice Guidelines were developed as part of our first work stream at EDAC. They are designed to provide guidance to research teams on how to produce co-produced research with and for Autistic people with eating disorders. Co-production refers to researchers and community members working together as equal partners from the beginning of the research process. The belief underpinning these guidelines is that meaningful and impactful research can only be developed in partnership with the community that is most affected by it. We hope to support researchers in the field to realise the benefits of co-production by addressing concerns about historical research and barriers to this process. ",

keywords = "ethical co-production, Co-Production, eating disorders, Autism, guideline, best practice, Collaborative research, EDAC",

author = "Emy Nimbley and Ellen Maloney and Karri Gillespie-Smith and Helen Sharpe and Kyle Buchan and Isla Whateley and Bryanna Lazich and Ollie Booth and Tasha Suratwala and Julie-Anne Baker and Casper Temples and Nix Renton and Emily Nuttall and Jessica Bragg and Harriet Darley and Lin Fidgin and Laura Campbell and Alison Shepherd and Jess Kerr-Gaffney and Kate Tchanturia and Sarah Kettley and Michelle Sader and Gordon Waiter and B. Choat and Joseph Long and Fiona Duffy",

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Nimbley, E, Maloney, E, Gillespie-Smith, K , Sharpe, H, Buchan, K, Whateley, I, Lazich, B, Booth, O, Suratwala, T, Baker, J-A, Temples, C, Renton, N, Nuttall, E, Bragg, J, Darley, H, Fidgin, L, Campbell, L, Shepherd, A, Kerr-Gaffney, J, Tchanturia, K, Kettley, S, Sader, M, Waiter, G, Choat, B, Long, J & Duffy, F, Conducting Ethical, Co-produced Research with and for Autistic Individuals with Eating Disorders: Best Practice Guidelines, 2024, Web publication/site.

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T1 - Conducting Ethical, Co-produced Research with and for Autistic Individuals with Eating Disorders

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AU - Nimbley, Emy

AU - Maloney, Ellen

AU - Gillespie-Smith, Karri

AU - Sharpe, Helen

AU - Buchan, Kyle

AU - Whateley, Isla

AU - Lazich, Bryanna

AU - Booth, Ollie

AU - Suratwala, Tasha

AU - Baker, Julie-Anne

AU - Temples, Casper

AU - Renton, Nix

AU - Nuttall, Emily

AU - Bragg, Jessica

AU - Darley, Harriet

AU - Fidgin, Lin

AU - Campbell, Laura

AU - Shepherd, Alison

AU - Kerr-Gaffney, Jess

AU - Tchanturia, Kate

AU - Kettley, Sarah

AU - Sader, Michelle

AU - Waiter, Gordon

AU - Choat, B.

AU - Long, Joseph

AU - Duffy, Fiona

PY - 2024/2/27

Y1 - 2024/2/27

N2 - The Best Practice Guidelines were developed as part of our first work stream at EDAC. They are designed to provide guidance to research teams on how to produce co-produced research with and for Autistic people with eating disorders. Co-production refers to researchers and community members working together as equal partners from the beginning of the research process. The belief underpinning these guidelines is that meaningful and impactful research can only be developed in partnership with the community that is most affected by it. We hope to support researchers in the field to realise the benefits of co-production by addressing concerns about historical research and barriers to this process.

AB - The Best Practice Guidelines were developed as part of our first work stream at EDAC. They are designed to provide guidance to research teams on how to produce co-produced research with and for Autistic people with eating disorders. Co-production refers to researchers and community members working together as equal partners from the beginning of the research process. The belief underpinning these guidelines is that meaningful and impactful research can only be developed in partnership with the community that is most affected by it. We hope to support researchers in the field to realise the benefits of co-production by addressing concerns about historical research and barriers to this process.

KW - ethical co-production

KW - Co-Production

KW - eating disorders

KW - Autism

KW - guideline

KW - best practice

KW - Collaborative research

KW - EDAC

UR - https://edacresearch.co.uk/news-and-events/5/launching-the-best-practice-guidelines-conducting-ethical-co-produced-research-with-and-for-autistic-individuals-with-eating-disorders

M3 - Web publication/site

ER -

Conducting Ethical, Co-produced Research with and for Autistic Individuals with Eating Disorders: Best Practice Guidelines

Abstract / Description of output

Keywords / Materials (for Non-textual outputs)

Other files and links

Fingerprint

EDAC: Enhancing Eating Disorder research networks: The Eating Disorders and Autism Collaborative

Barriers and facilitators to ethical co-production with Autistic people with an eating disorder

Eating Disorder and Autism Collaborative (EDAC) project outline: Promoting eating disorder research embedded in a neurodiversity-affirming culture

Cite this

Conducting Ethical, Co-produced Research with and for Autistic Individuals with Eating Disorders: Best Practice Guidelines

Abstract / Description of output

Keywords / Materials (for Non-textual outputs)

Other files and links

Fingerprint

Projects

EDAC: Enhancing Eating Disorder research networks: The Eating Disorders and Autism Collaborative

Research output

Barriers and facilitators to ethical co-production with Autistic people with an eating disorder

Eating Disorder and Autism Collaborative (EDAC) project outline: Promoting eating disorder research embedded in a neurodiversity-affirming culture

Cite this