Contact us for more information: an analysis of public enquiries about stem cells

Amy Zarzeczny, Claire Tanner, Jan Barfoot, Clare Blackburn, Anna Couturier, Megan Munsie

Research output: Contribution to journalArticlepeer-review

Abstract

Aim: This study examines online enquiries received by two prominent stem cell science initiatives operating in different geographical jurisdictions. Materials & methods: Combined quantitative and qualitative analysis undertaken of internet-based queries (n = 1047) received by Stem Cells Australia and EuroStemCell from members of the public over a two-year period (May 2014-2016). Results: Findings reveal striking similarities between the two datasets and highlight the range of uncertainties, priorities and needs of those seeking information about stem cells online. Conclusion: Sustained and in-depth tailored guidance is needed to effectively meet the diverse stem cell-related information-based needs of communities internationally. Such efforts should be prioritized by regenerative medicine research initiatives and organizations, given the trust and hope diverse publics appear to place in these groups.

Original languageEnglish
Pages (from-to)1137-1150
Number of pages14
JournalRegenerative medicine
Volume14
Issue number12
Early online date21 Jan 2020
DOIs
Publication statusE-pub ahead of print - 21 Jan 2020

Keywords

  • humans
  • information dissemination
  • information seeking behavior
  • internet
  • public health
  • stem cell research
  • stem cells
  • therapies
  • trust
  • investigational
  • statistics & numerical data
  • standards
  • methods

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