Abstract / Description of output
Introduction
Here we present the Scottish Linked Pregnancy and Baby Dataset (SLiPBD), a new national data resource held by Public Health Scotland (PHS).
Methods
SLiPBD comprises a population-based e-cohort of all fetuses and births (babies) from pregnancies to women in Scotland from 2000 onwards. It is updated monthly by linking and reconciling the following national datasets: antenatal booking records; general and maternity hospital discharge records; termination of pregnancy notifications; and statutory live and stillbirth registrations.
Results
Key information included on all babies in SLiPBD includes estimated date of conception, end of pregnancy date, gestation, multiple pregnancy status, pregnancy outcome, and maternal sociodemographic characteristics. For live births, additional information on the birth, the baby’s sociodemographic characteristics, and subsequent infant deaths is included.
Following the cohort refresh in January 2024, SLiPBD contained 1,770,226 babies from 1,750,830 pregnancies to 898,161 women. Of the 1,770,226 babies, 1,284,461 (73%) were live births, 5,731 (0.3%) stillbirths, and 316,897 (18%) and 114,840 (6%) came from a pregnancy ending a termination or early spontaneous loss respectively. 22,414 (1%) had an unknown pregnancy outcome, and for 25,883 (1%) the pregnancy was still ongoing. Data completeness for key sociodemographic characteristics except for ethnicity was very high, and variables showed expected patterns. Ethnicity data completeness is poor on historical records but improving over time. Completeness of unique patient identifiers was very high. External validation to source datasets was reassuring.
Conclusion
SLiPBD can be analysed standalone or linked to other national vital event and health datasets held by PHS. It supports longitudinal and intergenerational analyses, enabling epidemiological and health service surveillance and research on maternal and child health. Researchers interested in accessing pseudonymised extracts of SLiPBD through the Scottish NHS safe haven facility should contact Research Data Scotland. PHS will continue to refine SLiPBD as source datasets improve.
Here we present the Scottish Linked Pregnancy and Baby Dataset (SLiPBD), a new national data resource held by Public Health Scotland (PHS).
Methods
SLiPBD comprises a population-based e-cohort of all fetuses and births (babies) from pregnancies to women in Scotland from 2000 onwards. It is updated monthly by linking and reconciling the following national datasets: antenatal booking records; general and maternity hospital discharge records; termination of pregnancy notifications; and statutory live and stillbirth registrations.
Results
Key information included on all babies in SLiPBD includes estimated date of conception, end of pregnancy date, gestation, multiple pregnancy status, pregnancy outcome, and maternal sociodemographic characteristics. For live births, additional information on the birth, the baby’s sociodemographic characteristics, and subsequent infant deaths is included.
Following the cohort refresh in January 2024, SLiPBD contained 1,770,226 babies from 1,750,830 pregnancies to 898,161 women. Of the 1,770,226 babies, 1,284,461 (73%) were live births, 5,731 (0.3%) stillbirths, and 316,897 (18%) and 114,840 (6%) came from a pregnancy ending a termination or early spontaneous loss respectively. 22,414 (1%) had an unknown pregnancy outcome, and for 25,883 (1%) the pregnancy was still ongoing. Data completeness for key sociodemographic characteristics except for ethnicity was very high, and variables showed expected patterns. Ethnicity data completeness is poor on historical records but improving over time. Completeness of unique patient identifiers was very high. External validation to source datasets was reassuring.
Conclusion
SLiPBD can be analysed standalone or linked to other national vital event and health datasets held by PHS. It supports longitudinal and intergenerational analyses, enabling epidemiological and health service surveillance and research on maternal and child health. Researchers interested in accessing pseudonymised extracts of SLiPBD through the Scottish NHS safe haven facility should contact Research Data Scotland. PHS will continue to refine SLiPBD as source datasets improve.
Original language | English |
---|---|
Journal | International Journal of Population Data Science |
Volume | 9 |
Issue number | 2 |
DOIs | |
Publication status | Published - 18 Jul 2024 |