TY - JOUR
T1 - Desafios no cuidado a pessoas com demência
T2 - Comparando questões-chave entre Brasil e Reino Unido
AU - Durgante, Helen
AU - Contreras, Milena Lucía
AU - Backhouse, Tamara
AU - Mavrodaris, Angelique
AU - Ferreira, Michele Gomes
AU - Paulo, Debora Lee Vianna
AU - Alves, Marcus Vinicius
AU - Serelli, Larissa da Silva
AU - de Souza, Leonardo Cruz
AU - Kishita, Naoko
N1 - Funding Information:
1Departamento de Psiquiatria, Universidade Federal de São Paulo – São Paulo, SP, Brazil.2School of Health Sciences, University of East Anglia – Norwich, United Kingdom. 3Cambridge Institute of Public Health, University of Cambridge – Cambridge, United Kingdom. 4Faculdade de Medicina, Universidade Federal de Minas Gerais – Belo Horizonte, MG, Brazil. 5Faculdade de Ciências Médicas, Universidade Estadual de Campinas – Campinas, SP, Brazil. 6Departamento de Psicobiologia, Universidade Federal de São Paulo – São Paulo, SP, Brazil. Naoko Kishita. School of Health Sciences, Faculty of Medicine and Health Sciences, University of East Anglia, Norwich Research Park. Norwich, NR4 7TJ – United Kingdom. E-mail: [email protected] Disclosure: The authors report no conflicts of interest. Funding: This workshop was funded by a Global Challenges Research Fund Rapid Response Award from the University of East Anglia, Norwich, UK, and by the Behavioural and Cognitive Neurology Research Group from Faculdade de Medicina, Universidade Federal de Minas Gerais, Belo Horizonte, Brazil. The organisation of this event was also supported by the National Institute for Health Research Applied Research Collaboration East of England Programme. The views expressed are those of the authors and not necessarily those of the NHS, the NIHR or the Department of Health and Social Care.
Funding Information:
This workshop was funded by a Global Challenges Research Fund Rapid Response Award from the University of East Anglia, Norwich, UK, and by the Behavioural and Cognitive Neurology Research Group from Faculdade de Medicina, Universidade Federal de Minas Gerais, Belo Horizonte, Brazil. The organisation of this event was also supported by the National Institute for Health Research Applied Research Collaboration East of England Programme. The views expressed are those of the authors and not necessarily those of the NHS, the NIHR or the Department of Health and Social Care.The authors would like to thank all other workshop attendees who contributed to the discussion (in alphabetical order): Breno Jos? Alencar Pires Barbosa, Janine Bonfadini, Wyllians Vendramini Borelli, Jessyka Bram, Victor Calil, Leonardo G. M. Cardoso, Lucas de Carvalho, Francine Casemiro, Raquel da Costa, Natalia Dias, Emma Elliott, Abi Hall, Emma Hooper, Luciano In?cio Mariano, Deborah Oliveira, Natalie Pereira, Felipe de Oliveira Silva, Keir Yong. The workshop was co-chaired by international mentors (in alphabetical order): Maira Tonidan del Barbo-sa, Paulo Caramelli, Michael Hornberger, Naoko Kishita, Eneida Mioshi, Leonardo Cruz de Souza.
Publisher Copyright:
© 2020, Academia Brasileira de Neurologia. All rights reserved.
PY - 2020/9/18
Y1 - 2020/9/18
N2 - The United Kingdom-Brazil Dementia Workshop took place in July 2019 in the city of Belo Horizonte, MG, Brazil, with an interdisciplinary group of health and care professionals from the United Kingdom and from Brazil to address challenges in diagnosis, public perception and care of dementia. The aim of this article is to present the results identified in relation to challenges in the care of dementia, including recommendations that could potentially guide local and State/Municipal authorities and care services for people with dementia in the future. Four key issues were prioritised to identify challenges and generate possible solutions in Brazil and the United Kingdom: I) limitations of current health systems; II) continuous and long-term support for family carers (pre-diagnosis, mourning); III) support for people with advanced dementia and end-of-life care; IV) support for people with young-onset dementia. In both countries, carers feel left without post-diagnostic support; information on the progression of dementia is lacking and some people do not even have a specific diagnosis; encouraging and providing training for carers best manage some of the symptoms is imperative; preparation for end of life care and support carers after the death of their loved ones remains highly needed; strengthening services and qualification of health professionals, also creating protocols to guide dementia-related services represent a common challenge to overcome. The authors outline recommendations according to the issues identified to assist future formulation of adequate policies and services for people with dementia and carers.
AB - The United Kingdom-Brazil Dementia Workshop took place in July 2019 in the city of Belo Horizonte, MG, Brazil, with an interdisciplinary group of health and care professionals from the United Kingdom and from Brazil to address challenges in diagnosis, public perception and care of dementia. The aim of this article is to present the results identified in relation to challenges in the care of dementia, including recommendations that could potentially guide local and State/Municipal authorities and care services for people with dementia in the future. Four key issues were prioritised to identify challenges and generate possible solutions in Brazil and the United Kingdom: I) limitations of current health systems; II) continuous and long-term support for family carers (pre-diagnosis, mourning); III) support for people with advanced dementia and end-of-life care; IV) support for people with young-onset dementia. In both countries, carers feel left without post-diagnostic support; information on the progression of dementia is lacking and some people do not even have a specific diagnosis; encouraging and providing training for carers best manage some of the symptoms is imperative; preparation for end of life care and support carers after the death of their loved ones remains highly needed; strengthening services and qualification of health professionals, also creating protocols to guide dementia-related services represent a common challenge to overcome. The authors outline recommendations according to the issues identified to assist future formulation of adequate policies and services for people with dementia and carers.
KW - cross-cultural comparison
KW - dementia
KW - health care
KW - health programs and plans
KW - healthcare systems
UR - http://www.scopus.com/inward/record.url?scp=85090862912&partnerID=8YFLogxK
U2 - 10.1590/1980-57642020dn14-030003
DO - 10.1590/1980-57642020dn14-030003
M3 - Article
AN - SCOPUS:85090862912
SN - 1980-5764
VL - 14
SP - 216
EP - 222
JO - Dementia e Neuropsychologia
JF - Dementia e Neuropsychologia
IS - 3
ER -