Developing relevant community mental health programmes in North India: Five questions we ask when co-producing knowledge with experts by experience

Pooja Pillai, Meenal Rawat*, Sumeet Jain, Rachelle Anne Martin, Kakul Shelly, Kaaren Mathias

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review

Abstract

Knowledge co-production can improve the quality and accessibility of health, and also benefit service users, allowing them to be recognised as skilled and capable. Yet despite these clear benefits, there are inherent challenges in the power relations of co-production, particularly when experts by experience (EBE) are structurally disadvantaged in communication skills or literacy. The processes of how knowledge is co-produced and negotiated are seldom described. This paper aims to describe processes of co-production building on the experiences of EBE (people with lived experience of psychosocial or physical disability), practitioners and researchers working together with a non-profit community mental health programme in North India. We describe processes of group formation, relationship building, reflexive discussion and negotiation over a 7-year period with six diverse EBE groups.
Original languageEnglish
Article numbere011671
Pages (from-to)1-7
Number of pages7
JournalBMJ Global Health
Volume8
Issue number8
DOIs
Publication statusPublished - 31 Aug 2023

Keywords / Materials (for Non-textual outputs)

  • mental health & psychiatry
  • other study design

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