Projects per year
Abstract / Description of output
The EHR linked dataset is a key component of GS:SFHS, a biobank conceived in 1999 for the purpose of studying the genetics of health areas of current and projected public health importance. Over 24,000 adults were recruited from 2006 to 2011, with broad and enduring written informed consent for biomedical research. Consent was obtained from 23,603 participants for GS:SFHS study data to be linked to their Scottish National Health Service (NHS) records, using their Community Health Index number. This identifying number is used for NHS Scotland procedures (registrations, attendances, samples, prescribing and investigations) and allows healthcare records for individuals to be linked across time and location.
Here, we describe the NHS EHR dataset on the sub-cohort of 20,032 GS:SFHS participants with consent and mechanism for record linkage plus extensive genetic data. Together with existing study phenotypes, including family history and environmental exposures, such as smoking, the EHR is a rich resource of real world data that can be used in research to characterise the health trajectory of participants, available at low cost and a high degree of timeliness, matched to DNA, urine and serum samples and genome-wide genetic information.
Keywords / Materials (for Non-textual outputs)
- Electronic health record
- Generation Scotland
FingerprintDive into the research topics of 'Electronic health record and genome-wide genetic data in Generation Scotland participants'. Together they form a unique fingerprint.
- 3 Finished
1/04/11 → 31/03/14
1/10/03 → 31/08/07
- 1 Public Engagement – Festival/Exhibition
Andrew McIntosh (Host), Iona Beange (Contributor), Matthew Iveson (Contributor), Elizabeth Kirkham (Contributor), Mathew Harris (Contributor), Carys Pugh (Contributor), Susan Fletcher-Watson (Contributor), Robert Stewart (Contributor), Stephen Lawrie (Advisor), Colin Buchanan (Contributor) & Jonathan Seckl (Chair)9 Jul 2019
Activity: Participating in or organising an event types › Public Engagement – Festival/ExhibitionFile