Epidemiology Data from the Scottish Health and Ethnicity Linkage Study (SHELS)

Judith Fernandez; Anne Douglas; Genevieve Cezard; Raj Bhopal

doi:10.5334/ohd.an

Epidemiology Data from the Scottish Health and Ethnicity Linkage Study (SHELS)

Judith Fernandez, Anne Douglas, Genevieve Cezard, Raj Bhopal

Research output: Contribution to journal › Article › peer-review

Abstract

We linked the 2001 Scottish Census, which contains ethnicity, socio-economic and demographic data to health and death records, creating an anonymised retrospective cohort study of 4.65 million people to assess the association between ethnicity and health outcomes in Scotland. The databases contain data mostly from hospital discharge and mortality records, but also from other registers. The databases are stored in a safe haven at the National Records of Scotland (NRS). NRS is currently exploring the feasibility of making Scottish Health and Ethnicity Linkage Study (SHELS) data open access while ensuring that the same level of confidentiality is maintained. If SHELS becomes open access it could be reused, with the appropriate approvals, to assess the influence of other socio-economic or demographic measures on the Scottish population’s health.

Original language	English
Article number	e8
Journal	Open Health Data
Volume	2
DOIs	https://doi.org/10.5334/ohd.an
Publication status	Published - 27 Nov 2014

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Cite this

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title = "Epidemiology Data from the Scottish Health and Ethnicity Linkage Study (SHELS)",

abstract = "We linked the 2001 Scottish Census, which contains ethnicity, socio-economic and demographic data to health and death records, creating an anonymised retrospective cohort study of 4.65 million people to assess the association between ethnicity and health outcomes in Scotland. The databases contain data mostly from hospital discharge and mortality records, but also from other registers. The databases are stored in a safe haven at the National Records of Scotland (NRS). NRS is currently exploring the feasibility of making Scottish Health and Ethnicity Linkage Study (SHELS) data open access while ensuring that the same level of confidentiality is maintained. If SHELS becomes open access it could be reused, with the appropriate approvals, to assess the influence of other socio-economic or demographic measures on the Scottish population{\textquoteright}s health. ",

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AU - Bhopal, Raj

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AB - We linked the 2001 Scottish Census, which contains ethnicity, socio-economic and demographic data to health and death records, creating an anonymised retrospective cohort study of 4.65 million people to assess the association between ethnicity and health outcomes in Scotland. The databases contain data mostly from hospital discharge and mortality records, but also from other registers. The databases are stored in a safe haven at the National Records of Scotland (NRS). NRS is currently exploring the feasibility of making Scottish Health and Ethnicity Linkage Study (SHELS) data open access while ensuring that the same level of confidentiality is maintained. If SHELS becomes open access it could be reused, with the appropriate approvals, to assess the influence of other socio-economic or demographic measures on the Scottish population’s health.

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DO - 10.5334/ohd.an

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SN - 2054-7102

VL - 2

JO - Open Health Data

JF - Open Health Data

M1 - e8

ER -

Epidemiology Data from the Scottish Health and Ethnicity Linkage Study (SHELS)

Abstract

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Enhancing the Scottish Health and Ethnicity Linkage Study (SHELS) by adding respiratory and gastrointestinal mortality/morbity data and assessing the value of linkage primary care risk factor data

Ethnicity and Health in Scotland: making the information desert bloom a restrospective Cohort Study Linking Heath and Census Databases

Cite this

Epidemiology Data from the Scottish Health and Ethnicity Linkage Study (SHELS)

Abstract

Access to Document

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Projects

Enhancing the Scottish Health and Ethnicity Linkage Study (SHELS) by adding respiratory and gastrointestinal mortality/morbity data and assessing the value of linkage primary care risk factor data

Ethnicity and Health in Scotland: making the information desert bloom a restrospective Cohort Study Linking Heath and Census Databases

Cite this