TY - JOUR
T1 - Generation Scotland
T2 - Consulting Publics and Specialists at an Early Stage in a Genetic Database's Development
AU - Haddow, Gill
AU - Cunningham-Burley, Sarah
AU - Bruce, Ann
AU - Parry, Sarah
PY - 2008
Y1 - 2008
N2 - A preliminary consultation about Scotland's first family-based, population DNA database (Generation Scotland) involved 10 focus groups with diverse publics and a series of 17 interviews with key stakeholders in various locations in Scotland throughout 2003/2004. Unlike similar consultations on genetic databases, this took place at the concept phase of the proposed genetic research. We report on the specific concerns that arose around participation, access, use, feedback and public consultation. Broadly, we find differences between specialists and focus groups are mostly of degree and not of kind, although the specialists were more confident in some areas (e.g. governance). Given the salient and recurring nature of these issues when compared with the UK Biobank consultations, for example, we suggest that the efforts to consult have not been matched with equal effort on policy or institutional response. So, following from this, we offer compelling reasons for introducing more robust legislation and regulation.
AB - A preliminary consultation about Scotland's first family-based, population DNA database (Generation Scotland) involved 10 focus groups with diverse publics and a series of 17 interviews with key stakeholders in various locations in Scotland throughout 2003/2004. Unlike similar consultations on genetic databases, this took place at the concept phase of the proposed genetic research. We report on the specific concerns that arose around participation, access, use, feedback and public consultation. Broadly, we find differences between specialists and focus groups are mostly of degree and not of kind, although the specialists were more confident in some areas (e.g. governance). Given the salient and recurring nature of these issues when compared with the UK Biobank consultations, for example, we suggest that the efforts to consult have not been matched with equal effort on policy or institutional response. So, following from this, we offer compelling reasons for introducing more robust legislation and regulation.
KW - public engagement
KW - genetics
KW - governance
KW - specialists
KW - publics
UR - http://www.scopus.com/inward/record.url?scp=46049085015&partnerID=8YFLogxK
U2 - 10.1080/09581590701824086
DO - 10.1080/09581590701824086
M3 - Article
VL - 18
SP - 139
EP - 149
JO - Critical Public Health
JF - Critical Public Health
SN - 0958-1596
IS - 2
ER -