Generation Scotland participant survey on data collection

Rachel Edwards; Archie Campbell; David Porteous

doi:10.12688/wellcomeopenres.15354.2

Generation Scotland participant survey on data collection

Rachel Edwards, Archie Campbell, David Porteous

Research output: Contribution to journal › Article › peer-review

Abstract

Background: Generation Scotland (GS) is a population and family-based study of genetic and environmental health determinants. Recruitment to the Scottish Family Health Study component of GS took place between 2006-2011. Participants were aged 18 or over and consented to genetic studies, linkage to health records and recontact. Several recontact exercises have been successfully conducted aimed at a) recruitment to embedded or partner studies and b) the collection of additional data. As the cohort matures in age, we were interested in surveying attitudes to potential new approaches to data collection and recruitment.
Methods: A ten-question online survey was sent to those participants who provided an email address.
Results: We report a high level of positive responses to encouraging relatives to participate, to remote data and sample collection and for research access to stored newborn dried blood spots.
Conclusions: The majority of current and prospective GS participants are likely to respond positively to future requests for remote data and sample collection.

Original language	English
Pages (from-to)	111
Number of pages	15
Journal	Wellcome Open Research
Volume	4
DOIs	https://doi.org/10.12688/wellcomeopenres.15354.2
Publication status	Published - 15 Jan 2020

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10.12688/wellcomeopenres.15354.2

2020-01-15 Survey Monkey GS Published PaperFinal published version, 1.13 MB

https://wellcomeopenresearch.org/articles/4-111/v2

Stratifying Resilience and Depression Longitudinally
McIntosh, A. (Principal Investigator), Deary, I. (Co-investigator), Evans, K. (Co-investigator), Haley, C. (Co-investigator) & Porteous, D. (Co-investigator)
UK-based charities
1/01/15 → 30/06/21
Project: Research
Generation Scotland
Porteous, D. (Principal Investigator)
UK central government bodies/local authorities, health and hospital authorities
1/04/11 → 31/03/14
Project: Research
Genetic Health 21st Century
Porteous, D. (Principal Investigator), Laurie, G. (Co-investigator) & Tait, J. (Co-investigator)
UK central government bodies/local authorities, health and hospital authorities
1/10/03 → 31/08/07
Project: Research

Cite this

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title = "Generation Scotland participant survey on data collection",

abstract = "Background: Generation Scotland (GS) is a population and family-based study of genetic and environmental health determinants. Recruitment to the Scottish Family Health Study component of GS took place between 2006-2011. Participants were aged 18 or over and consented to genetic studies, linkage to health records and recontact. Several recontact exercises have been successfully conducted aimed at a) recruitment to embedded or partner studies and b) the collection of additional data. As the cohort matures in age, we were interested in surveying attitudes to potential new approaches to data collection and recruitment.Methods: A ten-question online survey was sent to those participants who provided an email address.Results: We report a high level of positive responses to encouraging relatives to participate, to remote data and sample collection and for research access to stored newborn dried blood spots.Conclusions: The majority of current and prospective GS participants are likely to respond positively to future requests for remote data and sample collection. ",

author = "Rachel Edwards and Archie Campbell and David Porteous",

year = "2020",

month = jan,

day = "15",

doi = "10.12688/wellcomeopenres.15354.2",

language = "English",

volume = "4",

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journal = "Wellcome Open Research ",

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T1 - Generation Scotland participant survey on data collection

AU - Edwards, Rachel

AU - Campbell, Archie

AU - Porteous, David

PY - 2020/1/15

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AB - Background: Generation Scotland (GS) is a population and family-based study of genetic and environmental health determinants. Recruitment to the Scottish Family Health Study component of GS took place between 2006-2011. Participants were aged 18 or over and consented to genetic studies, linkage to health records and recontact. Several recontact exercises have been successfully conducted aimed at a) recruitment to embedded or partner studies and b) the collection of additional data. As the cohort matures in age, we were interested in surveying attitudes to potential new approaches to data collection and recruitment.Methods: A ten-question online survey was sent to those participants who provided an email address.Results: We report a high level of positive responses to encouraging relatives to participate, to remote data and sample collection and for research access to stored newborn dried blood spots.Conclusions: The majority of current and prospective GS participants are likely to respond positively to future requests for remote data and sample collection.

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DO - 10.12688/wellcomeopenres.15354.2

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C2 - 31984240

SN - 2398-502X

VL - 4

SP - 111

JO - Wellcome Open Research

JF - Wellcome Open Research

ER -

Generation Scotland participant survey on data collection

Abstract

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Projects

Stratifying Resilience and Depression Longitudinally

Generation Scotland

Genetic Health 21st Century

Cite this