Genetic research on rare familial disorders: consent and the blurred boundaries between clinical service and research

M Ponder, H Statham, N Hallowell, J A Moon, M Richards, F L Raymond

Research output: Contribution to journalArticlepeer-review

Abstract

To study the consent process experienced by participants who are enrolled in a molecular genetic research study that aims to find new genetic mutations responsible for an apparently inherited disorder.
Original languageEnglish
Pages (from-to)690-4
Number of pages5
JournalJournal of Medical Ethics
Volume34
Issue number9
DOIs
Publication statusPublished - Sept 2008

Keywords / Materials (for Non-textual outputs)

  • Clinical Trials as Topic
  • Family
  • Female
  • Genetic Predisposition to Disease
  • Genetic Research
  • Great Britain
  • Humans
  • Informed Consent
  • Male
  • Patient Selection
  • Rare Diseases
  • Research Subjects

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