This chapter provides an overview of the current legal and policy lanscape governing genetic testing in the context of insurance and employment in the UK. It focuses on the characteristic features of the UK regulatory regime, namely the decision to avoid including 'genetic characteristics' within the general anti-discrimination legislation, and instead to regulate the use of genetic test results by insurers and employers through soft law guidance documents. Other relevant guidance documents are also considered. The overall adequacy of the UK regime, and the degree to which it satisfactorily reconciles the divergent interests of the various stakeholders, are critically examined.
|Title of host publication||Genetic Testing and the Governance of Risk in the Contemporary Economy|
|Editors||Lara Khoury, Adelle Blackett , Lukas Vanhonnaeker|
|Publication status||Published - 2 Oct 2020|