Holistic management of patients with progressive pulmonary fibrosis

Ana Oliveira, Gaia Fabbri, Thomas Gille, Elena Bargagli, Boris Duchemann, Rachel Evans, Hilary Pinnock, Anne E. Holland, Elisabetta Renzoni, Magnus Ekström, Steve Jones, Marlies Wijsenbeek, Anh Tuan Dinh-Xuan, Guido Vagheggini*

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review

Abstract / Description of output

Progressive pulmonary fibrosis (PF) is a complex interstitial lung disease that impacts substantially patients' daily lives, requiring personalised and integrated care. We summarise the main needs of patients with PF and their caregivers, and suggest a supportive care approach. Individualised care, education, emotional and psychological support, specialised treatments, and better access to information and resources are necessary. Management should start at diagnosis, be tailored to the patient's needs, and consider end-of-life care. Pharmacological and non-pharmacological interventions should be individualised, including oxygen therapy and pulmonary rehabilitation, with digital healthcare utilised as appropriate. Further research is needed to address technical issues related to oxygen delivery and digital healthcare.
Original languageEnglish
Article number230101
Number of pages15
Issue number3
Publication statusPublished - 12 Sept 2023


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