Holistic management of patients with progressive pulmonary fibrosis

Ana Oliveira; Gaia Fabbri; Thomas  Gille; Elena Bargagli; Boris Duchemann; Rachel Evans; Hilary Pinnock; Anne E. Holland; Elisabetta Renzoni; Magnus Ekström; Steve  Jones; Marlies Wijsenbeek; Anh Tuan Dinh-Xuan; Guido Vagheggini

doi:10.1183/20734735.0101-2023

Holistic management of patients with progressive pulmonary fibrosis

Ana Oliveira, Gaia Fabbri, Thomas Gille, Elena Bargagli, Boris Duchemann, Rachel Evans, Hilary Pinnock, Anne E. Holland, Elisabetta Renzoni, Magnus Ekström, Steve Jones, Marlies Wijsenbeek, Anh Tuan Dinh-Xuan, Guido Vagheggini^*

^*Corresponding author for this work

Research output: Contribution to journal › Article › peer-review

Abstract

Progressive pulmonary fibrosis (PF) is a complex interstitial lung disease that impacts substantially patients' daily lives, requiring personalised and integrated care. We summarise the main needs of patients with PF and their caregivers, and suggest a supportive care approach. Individualised care, education, emotional and psychological support, specialised treatments, and better access to information and resources are necessary. Management should start at diagnosis, be tailored to the patient's needs, and consider end-of-life care. Pharmacological and non-pharmacological interventions should be individualised, including oxygen therapy and pulmonary rehabilitation, with digital healthcare utilised as appropriate. Further research is needed to address technical issues related to oxygen delivery and digital healthcare.

Original language	English
Article number	230101
Number of pages	15
Journal	Breathe
Volume	19
Issue number	3
DOIs	https://doi.org/10.1183/20734735.0101-2023
Publication status	Published - 12 Sept 2023

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title = "Holistic management of patients with progressive pulmonary fibrosis",

abstract = "Progressive pulmonary fibrosis (PF) is a complex interstitial lung disease that impacts substantially patients' daily lives, requiring personalised and integrated care. We summarise the main needs of patients with PF and their caregivers, and suggest a supportive care approach. Individualised care, education, emotional and psychological support, specialised treatments, and better access to information and resources are necessary. Management should start at diagnosis, be tailored to the patient's needs, and consider end-of-life care. Pharmacological and non-pharmacological interventions should be individualised, including oxygen therapy and pulmonary rehabilitation, with digital healthcare utilised as appropriate. Further research is needed to address technical issues related to oxygen delivery and digital healthcare.",

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T1 - Holistic management of patients with progressive pulmonary fibrosis

AU - Oliveira, Ana

AU - Fabbri, Gaia

AU - Gille, Thomas

AU - Bargagli, Elena

AU - Duchemann, Boris

AU - Evans, Rachel

AU - Pinnock, Hilary

AU - Holland, Anne E.

AU - Renzoni, Elisabetta

AU - Ekström, Magnus

AU - Jones, Steve

AU - Wijsenbeek, Marlies

AU - Dinh-Xuan, Anh Tuan

AU - Vagheggini, Guido

PY - 2023/9/12

Y1 - 2023/9/12

N2 - Progressive pulmonary fibrosis (PF) is a complex interstitial lung disease that impacts substantially patients' daily lives, requiring personalised and integrated care. We summarise the main needs of patients with PF and their caregivers, and suggest a supportive care approach. Individualised care, education, emotional and psychological support, specialised treatments, and better access to information and resources are necessary. Management should start at diagnosis, be tailored to the patient's needs, and consider end-of-life care. Pharmacological and non-pharmacological interventions should be individualised, including oxygen therapy and pulmonary rehabilitation, with digital healthcare utilised as appropriate. Further research is needed to address technical issues related to oxygen delivery and digital healthcare.

AB - Progressive pulmonary fibrosis (PF) is a complex interstitial lung disease that impacts substantially patients' daily lives, requiring personalised and integrated care. We summarise the main needs of patients with PF and their caregivers, and suggest a supportive care approach. Individualised care, education, emotional and psychological support, specialised treatments, and better access to information and resources are necessary. Management should start at diagnosis, be tailored to the patient's needs, and consider end-of-life care. Pharmacological and non-pharmacological interventions should be individualised, including oxygen therapy and pulmonary rehabilitation, with digital healthcare utilised as appropriate. Further research is needed to address technical issues related to oxygen delivery and digital healthcare.

U2 - 10.1183/20734735.0101-2023

DO - 10.1183/20734735.0101-2023

M3 - Article

SN - 1810-6838

VL - 19

JO - Breathe

JF - Breathe

IS - 3

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ER -

Holistic management of patients with progressive pulmonary fibrosis

Abstract

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