Integrating patient-centered and tumour-centred cancer care: the EU-MyPath implementation project offers an innovative digital solution with care pathways

MyPath Consortium; Anne-Lore  Scherrens; An Jacobs; Kim  Beernaert; Koen  Pardon; Eveline  Raemdonck; Marie T Fallon; Kathrin Cresswell; Nuša Farič; Robin Williams; Tonje Lundeby; Marianne J Hjermstad; Luc Deliens; Stein Kaasa

doi:10.1177/26323524241296143

Integrating patient-centered and tumour-centred cancer care: the EU-MyPath implementation project offers an innovative digital solution with care pathways

MyPath Consortium, Anne-Lore Scherrens^*, An Jacobs, Kim Beernaert, Koen Pardon, Eveline Raemdonck, Marie T Fallon, Kathrin Cresswell, Nuša Farič, Robin Williams, Tonje Lundeby, Marianne J Hjermstad, Luc Deliens, Stein Kaasa

^*Corresponding author for this work

Research output: Contribution to journal › Article › peer-review

Abstract

Cancer is one of the leading causes of mortality, with new cases expected to rise. Medical advances increase cure rates and prolong patient lives, but survivorship involves high symptom burden, loss of function and emotional distress. Improving patient-centred care (PCC) and quality of life (QoL) throughout the care process is essential. Key to this improvement are systematic use of patient-reported outcome measures (PROMs) and patient-centred care pathways (PCCPs).
Despite established benefits, current cancer care focuses on tumour-centred care (TCC) approaches often neglecting the patient perspective. Evidence-based PCC guidelines fail to be routinely incorporated into clinical practices. The Horizon 2020-funded European MyPath project aims to address these gaps by developing, implementing, and evaluating digital PCCPs with PROMs. MyPath will be tailored to enhance the organizational contexts of cancer centers across Europe through the application of implementation science strategies.
This paper describes

Original language	English
Number of pages	11
Journal	Palliative Care and Social Practice
Volume	18
DOIs	https://doi.org/10.1177/26323524241296143
Publication status	Published - 19 Nov 2024

Keywords / Materials (for Non-textual outputs)

implementation science
medical oncology
patient care planning
patient-centred care
patient-reported outcome measures
psycho-oncology
quality of life

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MyPath Consortium, Scherrens, A.-L., Jacobs, A., Beernaert, K., Pardon, K., Raemdonck, E., Fallon, M. T., Cresswell, K., Farič, N., Williams, R., Lundeby, T., Hjermstad, M. J., Deliens, L., & Kaasa, S. (2024). Integrating patient-centered and tumour-centred cancer care: the EU-MyPath implementation project offers an innovative digital solution with care pathways. Palliative Care and Social Practice, 18. https://doi.org/10.1177/26323524241296143

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title = "Integrating patient-centered and tumour-centred cancer care: the EU-MyPath implementation project offers an innovative digital solution with care pathways",

abstract = "Cancer is one of the leading causes of mortality, with new cases expected to rise. Medical advances increase cure rates and prolong patient lives, but survivorship involves high symptom burden, loss of function and emotional distress. Improving patient-centred care (PCC) and quality of life (QoL) throughout the care process is essential. Key to this improvement are systematic use of patient-reported outcome measures (PROMs) and patient-centred care pathways (PCCPs). Despite established benefits, current cancer care focuses on tumour-centred care (TCC) approaches often neglecting the patient perspective. Evidence-based PCC guidelines fail to be routinely incorporated into clinical practices. The Horizon 2020-funded European MyPath project aims to address these gaps by developing, implementing, and evaluating digital PCCPs with PROMs. MyPath will be tailored to enhance the organizational contexts of cancer centers across Europe through the application of implementation science strategies.This paper describes ",

keywords = "implementation science, medical oncology, patient care planning, patient-centred care, patient-reported outcome measures, psycho-oncology, quality of life",

author = "{MyPath Consortium} and Anne-Lore Scherrens and An Jacobs and Kim Beernaert and Koen Pardon and Eveline Raemdonck and Fallon, {Marie T} and Kathrin Cresswell and Nu{\v s}a Fari{\v c} and Robin Williams and Tonje Lundeby and Hjermstad, {Marianne J} and Luc Deliens and Stein Kaasa",

note = "Availability of data and materialsMore information about the MyPath project canbe found at CORDIS services with DOI (https://cordis.europa.eu/project/id/101057514) and theMyPath website (mypath-cancercare.eu).",

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MyPath Consortium, Scherrens, A-L, Jacobs, A, Beernaert, K, Pardon, K, Raemdonck, E, Fallon, MT , Cresswell, K , Farič, N , Williams, R, Lundeby, T, Hjermstad, MJ, Deliens, L & Kaasa, S 2024, 'Integrating patient-centered and tumour-centred cancer care: the EU-MyPath implementation project offers an innovative digital solution with care pathways', Palliative Care and Social Practice, vol. 18. https://doi.org/10.1177/26323524241296143

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AU - MyPath Consortium

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AU - Beernaert, Kim

AU - Pardon, Koen

AU - Raemdonck, Eveline

AU - Fallon, Marie T

AU - Cresswell, Kathrin

AU - Farič, Nuša

AU - Williams, Robin

AU - Lundeby, Tonje

AU - Hjermstad, Marianne J

AU - Deliens, Luc

AU - Kaasa, Stein

N1 - Availability of data and materialsMore information about the MyPath project canbe found at CORDIS services with DOI (https://cordis.europa.eu/project/id/101057514) and theMyPath website (mypath-cancercare.eu).

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N2 - Cancer is one of the leading causes of mortality, with new cases expected to rise. Medical advances increase cure rates and prolong patient lives, but survivorship involves high symptom burden, loss of function and emotional distress. Improving patient-centred care (PCC) and quality of life (QoL) throughout the care process is essential. Key to this improvement are systematic use of patient-reported outcome measures (PROMs) and patient-centred care pathways (PCCPs). Despite established benefits, current cancer care focuses on tumour-centred care (TCC) approaches often neglecting the patient perspective. Evidence-based PCC guidelines fail to be routinely incorporated into clinical practices. The Horizon 2020-funded European MyPath project aims to address these gaps by developing, implementing, and evaluating digital PCCPs with PROMs. MyPath will be tailored to enhance the organizational contexts of cancer centers across Europe through the application of implementation science strategies.This paper describes

AB - Cancer is one of the leading causes of mortality, with new cases expected to rise. Medical advances increase cure rates and prolong patient lives, but survivorship involves high symptom burden, loss of function and emotional distress. Improving patient-centred care (PCC) and quality of life (QoL) throughout the care process is essential. Key to this improvement are systematic use of patient-reported outcome measures (PROMs) and patient-centred care pathways (PCCPs). Despite established benefits, current cancer care focuses on tumour-centred care (TCC) approaches often neglecting the patient perspective. Evidence-based PCC guidelines fail to be routinely incorporated into clinical practices. The Horizon 2020-funded European MyPath project aims to address these gaps by developing, implementing, and evaluating digital PCCPs with PROMs. MyPath will be tailored to enhance the organizational contexts of cancer centers across Europe through the application of implementation science strategies.This paper describes

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KW - medical oncology

KW - patient care planning

KW - patient-centred care

KW - patient-reported outcome measures

KW - psycho-oncology

KW - quality of life

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DO - 10.1177/26323524241296143

M3 - Article

SN - 2632-3524

VL - 18

JO - Palliative Care and Social Practice

JF - Palliative Care and Social Practice

ER -

Integrating patient-centered and tumour-centred cancer care: the EU-MyPath implementation project offers an innovative digital solution with care pathways

Abstract

Keywords / Materials (for Non-textual outputs)

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