Abstract / Description of output
Background:
Motor Neurone Disease (MND) is a rapidly progressive neurodegenerative disease, with up to 50% suffering from cognitive and/or behaviour changes.
Aims:
Evaluate current practices in the cognitive assessment of MND patients internationally.
Methods:
An online survey explored the use of cognitive assessments in MND clinics.
Findings:
80/195 clinicians responded. The Edinburgh Cognitive and Behavioural ALS Screen (ECAS) was the most popular method for evaluating cognition and 72% agreed that patients screened for cognitive change have better clinical care. Thematic analysis of open-ended responses indicated that cognitive assessments help to: identify and validate changes in cognition and behaviour, aid understanding of the clinical impact of the disease, inform and direct clinical care, and infer patients' decision-making abilities. However, a number of factors affected the implementation and administration of cognitive assessments in clinics.
Conclusions:
Cognitive assessments have been implemented in MND clinics internationally and have a positive impact on clinical practice.
Motor Neurone Disease (MND) is a rapidly progressive neurodegenerative disease, with up to 50% suffering from cognitive and/or behaviour changes.
Aims:
Evaluate current practices in the cognitive assessment of MND patients internationally.
Methods:
An online survey explored the use of cognitive assessments in MND clinics.
Findings:
80/195 clinicians responded. The Edinburgh Cognitive and Behavioural ALS Screen (ECAS) was the most popular method for evaluating cognition and 72% agreed that patients screened for cognitive change have better clinical care. Thematic analysis of open-ended responses indicated that cognitive assessments help to: identify and validate changes in cognition and behaviour, aid understanding of the clinical impact of the disease, inform and direct clinical care, and infer patients' decision-making abilities. However, a number of factors affected the implementation and administration of cognitive assessments in clinics.
Conclusions:
Cognitive assessments have been implemented in MND clinics internationally and have a positive impact on clinical practice.
| Original language | English |
|---|---|
| Pages (from-to) | 38-44 |
| Journal | British Journal of Neuroscience Nursing |
| Volume | 18 |
| Issue number | 1 |
| Early online date | 26 Feb 2022 |
| DOIs | |
| Publication status | Published - Feb 2022 |
Keywords / Materials (for Non-textual outputs)
- amyotrophic lateral sclerosis
- behaviour
- cognition
- ECAS
- motor neurone disease
- screening