International evaluation of current practices in cognitive assessment for motor neurone disease

Debbie Gray, Sharon Abrahams

Research output: Contribution to journalArticlepeer-review


Motor Neurone Disease (MND) is a rapidly progressive neurodegenerative disease, with up to 50% suffering from cognitive and/or behaviour changes.

Evaluate current practices in the cognitive assessment of MND patients internationally.

An online survey explored the use of cognitive assessments in MND clinics.

80/195 clinicians responded. The Edinburgh Cognitive and Behavioural ALS Screen (ECAS) was the most popular method for evaluating cognition and 72% agreed that patients screened for cognitive change have better clinical care. Thematic analysis of open-ended responses indicated that cognitive assessments help to: identify and validate changes in cognition and behaviour, aid understanding of the clinical impact of the disease, inform and direct clinical care, and infer patients' decision-making abilities. However, a number of factors affected the implementation and administration of cognitive assessments in clinics.

Cognitive assessments have been implemented in MND clinics internationally and have a positive impact on clinical practice.
Original languageEnglish
Pages (from-to)38-44
JournalBritish Journal of Neuroscience Nursing
Issue number1
Early online date26 Feb 2022
Publication statusPublished - Feb 2022


  • amyotrophic lateral sclerosis
  • behaviour
  • cognition
  • ECAS
  • motor neurone disease
  • screening


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