Legal and ethico-legal issues in e-healthcare research projects in the UK

Caroline McCubbin; Claudia Pagliari

doi:10.1016/j.socscimed.2005.11.018

Legal and ethico-legal issues in e-healthcare research projects in the UK

Research output: Contribution to journal › Article › peer-review

Abstract

This report first gives an overview of e-healthcare research activity in the UK. It then summarises available information concerning legal hurdles and issues faced by these projects, provides an overview of work being carried out to investigate these hurdles, and considers some of the proposals put forward to overcome them. It is an initial scoping review (using both literary and web-based resources)—rather than a systematic or analytical review—of e-health which addresses specific strands relating to legal and ethico-legal issues and identifies activity in these areas. It is hoped that this preliminary scoping exercise will stimulate further research and analysis.

Original language	English
Pages (from-to)	2768–2773
Number of pages	6
Journal	Social Science & Medicine
Volume	62
Issue number	11
DOIs	https://doi.org/10.1016/j.socscimed.2005.11.018
Publication status	Published - Jun 2006

Keywords / Materials (for Non-textual outputs)

eHealth
Ethics
Law
Research Ethics
Data Ethics
Medical Ethics
Information governance
Digital Health

Access to Document

10.1016/j.socscimed.2005.11.018Licence: Unspecified

https://www.sciencedirect.com/science/article/abs/pii/S0277953605006118

1 Active

Ethics and Governance of Digital Health
Pagliari, C. (Principal Investigator)
1/01/05 → 1/12/30
Project: Research

8 Article
3 Conference contribution
3 Other contribution
2 Book
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The ethics and value of contact tracing apps: International Insights and Implications for Scotland
Pagliari, C., 10 Dec 2020, In: Journal of Global Health. 10, 2, 18 p.
Research output: Contribution to journal › Editorial › peer-review

Open Access
File
Covid-19 reveals the need to review the transparency and independence of scientific advice.
Weinberg, N. & Pagliari, C., 15 Jun 2020, UK Constitutional Law Association, Blog.
Research output: Contribution to specialist publication › Featured article

Open Access
Use of Participatory Apps in Contact Tracing: Options and Implications for Public Health, Privacy and Trust [Report]
Buchanan, B., Imran, M., Pagliari, C., Pell, J. & Rimpiläinen, S., 2 Jun 2020, University of Strathclyde.
Research output: Working paper

Open Access
File

Artificial Intelligence in global health - engaging technological and social innovations
Pagliari, C. (Invited speaker)
30 Nov 2020
Activity: Academic talk or presentation types › Invited talk
Inclusive, Human-Centred Design: Why is it Ethical?
Pagliari, C. (Invited speaker)
21 Oct 2020
Activity: Academic talk or presentation types › Invited talk
London School of Hygiene & Tropical Medicine
Pagliari, C. (Speaker)
13 Oct 2020
Activity: Visiting an external institution types › Research and Teaching at External Organisation

Cite this

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title = "Legal and ethico-legal issues in e-healthcare research projects in the UK",

abstract = "This report first gives an overview of e-healthcare research activity in the UK. It then summarises available information concerning legal hurdles and issues faced by these projects, provides an overview of work being carried out to investigate these hurdles, and considers some of the proposals put forward to overcome them. It is an initial scoping review (using both literary and web-based resources)—rather than a systematic or analytical review—of e-health which addresses specific strands relating to legal and ethico-legal issues and identifies activity in these areas. It is hoped that this preliminary scoping exercise will stimulate further research and analysis.",

keywords = "eHealth, Ethics, Law, Research Ethics, Data Ethics, Medical Ethics, Information governance, Digital Health",

author = "Caroline McCubbin and Claudia Pagliari",

note = "Claudia Pagliari acted as a consultant for this paper, written by lawyer Caroline McCubbin in 2005. It draws heavily on a major scoping review of the eHealth field, undertaken by Dr Pagliari in 2004-5. This contribution involved interviews, proof reading and editing/augmenting the article. ",

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KW - eHealth

KW - Ethics

KW - Law

KW - Research Ethics

KW - Data Ethics

KW - Medical Ethics

KW - Information governance

KW - Digital Health

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DO - 10.1016/j.socscimed.2005.11.018

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ER -

Legal and ethico-legal issues in e-healthcare research projects in the UK

Abstract

Keywords / Materials (for Non-textual outputs)

Access to Document

Fingerprint

Projects

Ethics and Governance of Digital Health

Research output

The ethics and value of contact tracing apps: International Insights and Implications for Scotland

Covid-19 reveals the need to review the transparency and independence of scientific advice.

Use of Participatory Apps in Contact Tracing: Options and Implications for Public Health, Privacy and Trust [Report]

Activities

Artificial Intelligence in global health - engaging technological and social innovations

Inclusive, Human-Centred Design: Why is it Ethical?

London School of Hygiene & Tropical Medicine

Cite this