Measuring eating disorders in Autistic people: A proposal for future research

Phaedra Longhurst*, Emy Nimbley, Elizabeth H. Evans, Keren MacLennan, Karri Gillespie-Smith, Fiona Duffy

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review

Abstract / Description of output

While diagnostic pathways for identifying Autism in eating disorder (ED) populations have been developed, the field continues to lack validated psychometric tools to measure EDs for use in the Autistic population. Many commonly used measures for EDs potentially lack validity and reliability in the Autistic population limiting theoretical and practical advancements in the field. This paper outlines current conflicts in autism and ED research and how these can be addressed through psychometric methodology. We discuss: (1) the lack of differentiation between ED pathology and Autistic eating behaviours, as well as the limited inclusion of autism-specific mechanisms in existing tools; (2) the subsequent theoretical and practical implications for researchers, clinicians, and Autistic people; and (3) future directions for psychometric research. Scholars are encouraged to employ participatory designs with autistic people, before carefully considering which analytical strategies are used in the Autistic population.
Original languageEnglish
JournalEating Disorders: The Journal of Treatment and Prevention
Early online date16 Oct 2024
DOIs
Publication statusE-pub ahead of print - 16 Oct 2024

Keywords / Materials (for Non-textual outputs)

  • autism
  • neurodivergence
  • psychometrics
  • assessment tools
  • eating disorders
  • participatory research

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