TY - JOUR
T1 - National ICU Registries as Enablers of Clinical Research and Quality Improvement
AU - Linking of Global Intensive Care (LOGIC) and Japanese Intensive care PAtient Database (JIPAD) Working Group
AU - Salluh, Jorge I F
AU - Quintairos, Amanda
AU - Dongelmans, Dave A
AU - Aryal, Diptesh
AU - Bagshaw, Sean
AU - Beane, Abigail
AU - Burghi, Gaston
AU - López, Maria Del Pilar Arias
AU - Finazzi, Stefano
AU - Guidet, Bertrand
AU - Hashimoto, Satoru
AU - Ichihara, Nao
AU - Litton, Edward
AU - Lone, Nazir I
AU - Pari, Vrindha
AU - Sendagire, Cornelius
AU - Vijayaraghavan, Bharath Kumar Tirupakuzhi
AU - Haniffa, Rashan
AU - Pisani, Luigi
AU - Pilcher, David
N1 - Copyright © 2023 by the Society of Critical Care Medicine and Wolters Kluwer Health, Inc. All Rights Reserved.
PY - 2024/1/1
Y1 - 2024/1/1
N2 - OBJECTIVES: Clinical quality registries (CQRs) have been implemented worldwide by several medical specialties aiming to generate a better characterization of epidemiology, treatments, and outcomes of patients. National ICU registries were created almost 3 decades ago to improve the understanding of case-mix, resource use, and outcomes of critically ill patients. This narrative review describes the challenges, proposed solutions, and evidence generated by National ICU registries as facilitators for research and quality improvement.DATA SOURCES: English language articles were identified in PubMed using phrases related to ICU registries, CQRs, outcomes, and case-mix.STUDY SELECTION: Original research, review articles, letters, and commentaries, were considered.DATA EXTRACTION: Data from relevant literature were identified, reviewed, and integrated into a concise narrative review.DATA SYNTHESIS: CQRs have been implemented worldwide by several medical specialties aiming to generate a better characterization of epidemiology, treatments, and outcomes of patients. National ICU registries were created almost 3 decades ago to improve the understanding of case-mix, resource use, and outcomes of critically ill patients. The initial experience in European countries and in Oceania ensured that through locally generated data, ICUs could assess their performances by using risk-adjusted measures and compare their results through fair and validated benchmarking metrics with other ICUs contributing to the CQR. The accomplishment of these initiatives, coupled with the increasing adoption of information technology, resulted in a broad geographic expansion of CQRs as well as their use in quality improvement studies, clinical trials as well as international comparisons, and benchmarking for ICUs.CONCLUSIONS: ICU registries have provided increased knowledge of case-mix and outcomes of ICU patients based on real-world data and contributed to improve care delivery through quality improvement initiatives and trials. Recent increases in adoption of new technologies (i.e., cloud-based structures, artificial intelligence, machine learning) will ensure a broader and better use of data for epidemiology, healthcare policies, quality improvement, and clinical trials.
AB - OBJECTIVES: Clinical quality registries (CQRs) have been implemented worldwide by several medical specialties aiming to generate a better characterization of epidemiology, treatments, and outcomes of patients. National ICU registries were created almost 3 decades ago to improve the understanding of case-mix, resource use, and outcomes of critically ill patients. This narrative review describes the challenges, proposed solutions, and evidence generated by National ICU registries as facilitators for research and quality improvement.DATA SOURCES: English language articles were identified in PubMed using phrases related to ICU registries, CQRs, outcomes, and case-mix.STUDY SELECTION: Original research, review articles, letters, and commentaries, were considered.DATA EXTRACTION: Data from relevant literature were identified, reviewed, and integrated into a concise narrative review.DATA SYNTHESIS: CQRs have been implemented worldwide by several medical specialties aiming to generate a better characterization of epidemiology, treatments, and outcomes of patients. National ICU registries were created almost 3 decades ago to improve the understanding of case-mix, resource use, and outcomes of critically ill patients. The initial experience in European countries and in Oceania ensured that through locally generated data, ICUs could assess their performances by using risk-adjusted measures and compare their results through fair and validated benchmarking metrics with other ICUs contributing to the CQR. The accomplishment of these initiatives, coupled with the increasing adoption of information technology, resulted in a broad geographic expansion of CQRs as well as their use in quality improvement studies, clinical trials as well as international comparisons, and benchmarking for ICUs.CONCLUSIONS: ICU registries have provided increased knowledge of case-mix and outcomes of ICU patients based on real-world data and contributed to improve care delivery through quality improvement initiatives and trials. Recent increases in adoption of new technologies (i.e., cloud-based structures, artificial intelligence, machine learning) will ensure a broader and better use of data for epidemiology, healthcare policies, quality improvement, and clinical trials.
KW - Humans
KW - Quality Improvement
KW - Critical Illness/epidemiology
KW - Artificial Intelligence
KW - Intensive Care Units
KW - Registries
U2 - 10.1097/CCM.0000000000006050
DO - 10.1097/CCM.0000000000006050
M3 - Review article
C2 - 37698452
SN - 0090-3493
VL - 52
SP - 125
EP - 135
JO - Critical Care Medicine
JF - Critical Care Medicine
IS - 1
ER -