Palliative Care Research in Africa: Consensus Building for a Prioritized Agenda

Richard A. Powell*, Richard Harding, Eve Namisango, Elly Katabira, Liz Gwyther, Lukas Radbruch, Scott A. Murray, Maged El-Ansary, Mhoira Leng, Ike O. Ajayi, Charmaine Blanchard, Helen Kariuki, Ivy Kasirye, Elizabeth Namukwaya, Nahla Gafer, David Casarett, Mackuline Atieno, Faith N. Mwangi-Powell

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review

Abstract

Context. Palliative care research in Africa is in its relative infancy, with dedicated financial support extremely limited. Therefore, setting research priorities to optimize use of limited resources is imperative.

Objectives. To develop a prioritized research agenda for palliative care in Africa.

Methods. We used a two-stage process involving palliative care professionals and researchers: 1) generation of an initial topic list at a consultative workshop of experts and 2) prioritization of that list using a consensus development process, the nominal group technique.

Results. Phase 1: 41 topics were generated across five groups, with several topics nominated in more than one group. Phase 2: 16 topics and three broad thematic areas were identified. The two most prioritized topics within each of the three themes were the following: Theme 1: patient, family, and volunteers-1) care outcomes and the impact of palliative care as perceived by patients and caregivers and 2) palliative care needs of children; Theme 2: health providers-1) impact of palliative care training on care and practice and 2) integration of palliative care and antiretroviral therapy services; and Theme 3: health systems-1) palliative care needs assessments at the micro-, meso-, and macro-levels and 2) integration of palliative care into health systems and educational curricula.

Conclusion. Consensus-based palliative care topics determined by the study can assist researchers in optimizing limited research capacities by focusing on these prioritized areas. Subsequent to the identification and publication of the research agenda, concrete steps will be undertaken by the African Palliative Care Research Network and other partners to help implement it. (C) 2014 U. S. Cancer Pain Relief Committee. Published by Elsevier Inc. All rights reserved.

Original languageEnglish
Pages (from-to)315-324
Number of pages10
JournalJournal of Pain and Symptom Management
Volume47
Issue number2
DOIs
Publication statusPublished - Feb 2014

Keywords

  • Africa
  • research agenda
  • participatory
  • priorities
  • palliative care
  • SUB-SAHARAN AFRICA
  • OF-LIFE CARE
  • EVIDENCE BASE
  • HEALTH
  • CHALLENGES
  • WORKSHOP

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