Parents’ experiences of using a hybrid closed-loop system (CamAPS FX) to care for a very young child with type 1 diabetes: qualitative study

Barbara Kimbell, David Rankin, Ruth Hart, Janet M Allen, CK Boughton, Fiona Campbell, Elke Frohlich-Reiterer, Sabine E Hofer, Thomas M Kapellen, Birgit Rami-Merhar, Ulrike Schierloh, Ajay Thankamony, Julia Ware, Roman Hovorka, Julia Lawton

Research output: Contribution to journalArticlepeer-review

Abstract

Aims
To explore parents’ experiences of using a hybrid closed-loop system (CamAPS FX) when caring for a very young child (aged 1–7 years) with type 1 diabetes.

Methods
Interviews with n = 33 parents of 30 children who used the system during a randomised controlled trial. Data analysis used a descriptive thematic approach.

Results
While some parents were initially reticent about handing control to the system, all reported clinical benefits to using the technology, having to do less diabetes-related work and needing less clinical input over time. Parents welcomed opportunities to enhance the system’s efficacy (using Ease-off and Boost functions) as required. Parents described how the system’s automated glucose control facilitated more normality, including sleeping better, worrying less about their child, and feeling more confident and able to outsource care. Parents also described more normality for the child (alongside better sleep, mood and concentration, and lessened distress) and siblings. Parents liked being able to administer insulin using a smartphone, but suggested refinements to device size and functionality.

Conclusions
Using a hybrid closed-loop system in very young children can facilitate greater normality and may result in a lessened demand for health professionals’ input. Systems may need to be customised for very young children.
Original languageEnglish
JournalDiabetes Research and Clinical Practice
Early online date22 Apr 2022
DOIs
Publication statusE-pub ahead of print - 22 Apr 2022

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