Parry-Romberg syndrome: a global survey of 205 patients using the Internet

Jon Stone; Jon Stone

Parry-Romberg syndrome: a global survey of 205 patients using the Internet

Jon Stone, Jon Stone

Research output: Contribution to journal › Article › peer-review

Abstract / Description of output

Parry-Romberg syndrome (PRS) is a rare neurocutaneous disorder characterized by progressive facial hemiatrophy. In this study, 205 patients with PRS were surveyed using the Internet. Estimates of the frequency of limb involvement (19%), epilepsy (11%), and other clinical and etiologic features were obtained. There was a wide range of age at onset and considerable diagnostic overlap with scleroderma "en coup de sabre."

Original language	English
Pages (from-to)	674-6
Number of pages	3
Journal	Neurology
Volume	61
Issue number	5
Publication status	Published - 9 Sept 2003

Keywords / Materials (for Non-textual outputs)

Adolescent
Adult
Child
Child, Preschool
Data Collection
Facial Hemiatrophy
Female
Humans
Internet
Male
Middle Aged

Cite this

@article{fe49c9a0b1064d7dbef30235f6e67b95,

title = "Parry-Romberg syndrome: a global survey of 205 patients using the Internet",

abstract = "Parry-Romberg syndrome (PRS) is a rare neurocutaneous disorder characterized by progressive facial hemiatrophy. In this study, 205 patients with PRS were surveyed using the Internet. Estimates of the frequency of limb involvement (19%), epilepsy (11%), and other clinical and etiologic features were obtained. There was a wide range of age at onset and considerable diagnostic overlap with scleroderma {"}en coup de sabre.{"}",

keywords = "Adolescent, Adult, Child, Child, Preschool, Data Collection, Facial Hemiatrophy, Female, Humans, Internet, Male, Middle Aged",

author = "Jon Stone and Jon Stone",

year = "2003",

month = sep,

day = "9",

language = "English",

volume = "61",

pages = "674--6",

journal = "Neurology",

issn = "0028-3878",

publisher = "Lippincott Williams and Wilkins",

number = "5",

}

TY - JOUR

T1 - Parry-Romberg syndrome

T2 - a global survey of 205 patients using the Internet

AU - Stone, Jon

PY - 2003/9/9

Y1 - 2003/9/9

N2 - Parry-Romberg syndrome (PRS) is a rare neurocutaneous disorder characterized by progressive facial hemiatrophy. In this study, 205 patients with PRS were surveyed using the Internet. Estimates of the frequency of limb involvement (19%), epilepsy (11%), and other clinical and etiologic features were obtained. There was a wide range of age at onset and considerable diagnostic overlap with scleroderma "en coup de sabre."

AB - Parry-Romberg syndrome (PRS) is a rare neurocutaneous disorder characterized by progressive facial hemiatrophy. In this study, 205 patients with PRS were surveyed using the Internet. Estimates of the frequency of limb involvement (19%), epilepsy (11%), and other clinical and etiologic features were obtained. There was a wide range of age at onset and considerable diagnostic overlap with scleroderma "en coup de sabre."

KW - Adolescent

KW - Adult

KW - Child

KW - Child, Preschool

KW - Data Collection

KW - Facial Hemiatrophy

KW - Female

KW - Humans

KW - Internet

KW - Male

KW - Middle Aged

M3 - Article

C2 - 12963760

SN - 0028-3878

VL - 61

SP - 674

EP - 676

JO - Neurology

JF - Neurology

IS - 5

ER -

Parry-Romberg syndrome: a global survey of 205 patients using the Internet

Abstract / Description of output

Keywords / Materials (for Non-textual outputs)

Fingerprint

Cite this