Patients’ and Clinicians’ Perspectives on the Acceptability of Completing Digital Quality of Life Questionnaires during Routine Haemodialysis Clinics: a Mixed-Methods Study

Ramsey Meiklem, Karen Stevenson, Sabine Richarz, David Kingsmore, Matt-Mouley Bouamrane, Mark Dunlop, Peter C Thomson

Research output: Contribution to conferencePaperpeer-review

Abstract / Description of output

Advanced chronic kidney disease is a serious and common medical condition with significant treatment choices incurring varying high treatment burdens. Better understanding on how to best collect quality of life (QoL) in this unique situation may help guide critical decisions. This study investigates the acceptability of digital QoL questionnaires completed during routine haemodialysis sessions. Qualitative data was collected from patient (n=23) and clinical researcher (n=2) interviews alongside analysis of data from questionnaires completed by patients (n=101) during a 6-week validation study. Interviews refined the content and format of digital QoL questionnaires and provided novel insights regarding how patients assessed and completed QoL questions. This study suggests collecting QoL data using digital tablet technology during routine haemodialysis clinics is both feasible and acceptable to patients and has provided novel insights that are not routinely available with traditional methods.
Original languageEnglish
Pages752-756
Number of pages756
DOIs
Publication statusPublished - 1 Jun 2022
EventMEDINFO 2021: One World, One Health — Global Partnership for Digital Innovation
: 18th World Congress on Medical and Health Informatics
- Online
Duration: 2 Oct 20214 Oct 2021
https://imia-medinfo.org/medinfo21/

Conference

ConferenceMEDINFO 2021: One World, One Health — Global Partnership for Digital Innovation
Abbreviated titleMEDINFO 2021
Period2/10/214/10/21
Internet address

Keywords / Materials (for Non-textual outputs)

  • Advanced Chronic Kidney Disease
  • Quality of Life Measures
  • Digital Questionnaires

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