"People Power" or "Pester Power"? YouTube as a Forum for the Generation of Evidence and Patient Advocacy

Fadhila Mazanderani, Braden O'Neill, John Powell

Research output: Contribution to journalArticlepeer-review

Abstract

Venoplasty has been proposed, alongside the theory of chronic cerebrospinal venous insufficiency (CCSVI), as a treatment for multiple sclerosis (MS). Despite concerns about its efficacy and safety, thousands of patients have undergone the procedure. This paper analyses YouTube videos where patients have shared their treatment experiences.
Original languageEnglish
JournalPatient Education and Counseling
Early online date2 Jul 2013
DOIs
Publication statusPublished - 2 Jul 2013

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