Postpartum psychosis: a public involvement perspective across three continents

Jessica Mei Kay Yang, Kimneihat Vaiphei, Mercy Siliya, Thandiwe Mkandawire, Clare Dolman, Jessica Heron, Sally Wilson, Shivanand Yaresheemi, Danielle Kitney, Leah Bailey, Chloe Apsey, Olive Liwimbi, Robert Stewart, Harish Thippeswamy, Ian Jones, Genesis Chorwe-Sungani, Prabha Chandra, Arianna Di Florio*

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review

Abstract / Description of output

Postpartum psychosis is a psychiatric emergency that is currently not represented in diagnostic systems, to the detriment of people with lived experience. Engaging with stakeholders offers an important avenue to improve clinical practice and make research more impactful, by providing perspectives based on first-hand, expert experience. There is a paucity of reports on stakeholders' engagement in psychiatry. Activities have thus far been limited to Western countries and there are few reports on postpartum psychosis. We report the results of public involvement activities (in the form of discussion groups) with key stakeholders in India, Malawi and the UK. These discussions centred around the clinical picture of postpartum psychosis and the terminologies used to describe these episodes. Seven major areas were highlighted: how postpartum psychosis is handled within services, common symptoms and characteristics, impact of episode, barriers to care, non-medical approaches, terminology and research areas of interest. According to the discussions, postpartum psychosis presents similarly across countries, although there are differences in access to services, approaches to mental health and terminologies used within and across countries. With this understanding comes the foundation for cross-cultural assessment, service improvement and a stakeholder-informed research agenda.

Original languageEnglish
JournalArchives of women's mental health
Early online date24 Aug 2023
Publication statusE-pub ahead of print - 24 Aug 2023

Keywords / Materials (for Non-textual outputs)

  • Cross-cultural
  • Low- and lower-middle income countries
  • Maternal mental health
  • Postpartum psychosis
  • Public involvement


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