Power to the people: A wiki-governance model for biobanks

Edward S. Dove*, Yann Joly, Bartha M. Knoppers

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review

Abstract

Biobanks are adopting various modes of public engagement to close the agency gap between participants and biobank builders. We propose a wiki-governance model for biobanks that harnesses Web 2.0, and which gives citizens the ability to collaborate in biobank governance and policymaking.

Original languageEnglish
Article number158
JournalGenome Biology
Volume13
Issue number5
DOIs
Publication statusPublished - 29 May 2012

Keywords

  • biobank
  • collaboration
  • genomics
  • governance
  • networks
  • public participation
  • social media
  • Web 2.0

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