Preferences for place of death if faced with advanced cancer: a population survey in England, Flanders, Germany, Italy, the Netherlands, Portugal and Spain

on behalf of PRISMA; B Gomes; I J Higginson; N Calanzani; J Cohen; L Deliens; B A Daveson; D Bechinger-English; C Bausewein; P L Ferreira; F Toscani; A Meñaca; M Gysels; L Ceulemans; S T Simon; H R W Pasman; G Albers; S Hall; F E M Murtagh; D F Haugen; J Downing; J Koffman; F Pettenati; S Finetti; B Antunes; R Harding

doi:10.1093/annonc/mdr602

Preferences for place of death if faced with advanced cancer: a population survey in England, Flanders, Germany, Italy, the Netherlands, Portugal and Spain

on behalf of PRISMA, B Gomes, I J Higginson, N Calanzani, J Cohen, L Deliens, B A Daveson, D Bechinger-English, C Bausewein, P L Ferreira, F Toscani, A Meñaca, M Gysels, L Ceulemans, S T Simon, H R W Pasman, G Albers, S Hall, F E M Murtagh, D F HaugenJ Downing, J Koffman, F Pettenati, S Finetti, B Antunes, R Harding

Deanery of Molecular, Genetic and Population Health Sciences

Research output: Contribution to journal › Article › peer-review

Abstract

BACKGROUND: Cancer end-of-life care (EoLC) policies assume people want to die at home. We aimed to examine variations in preferences for place of death cross-nationally.

METHODS: A telephone survey of a random sample of individuals aged ≥16 in England, Flanders, Germany, Italy, the Netherlands, Portugal and Spain. We determined where people would prefer to die if they had a serious illness such as advanced cancer, facilitating circumstances, personal values and experiences of illness, death and dying.

RESULTS: Of 9344 participants, between 51% (95% CI: 48% to 54%) in Portugal and 84% (95% CI: 82% to 86%) in the Netherlands would prefer to die at home. Cross-national analysis found there to be an influence of circumstances and values but not of experiences of illness, death and dying. Four factors were associated with a preference for home death in more than one country: younger age up to 70+ (Germany, the Netherlands, Portugal, Spain), increased importance of dying in the preferred place (England, Germany, Portugal, Spain), prioritizing keeping a positive attitude (Germany, Spain) and wanting to involve family in decisions if incapable (Flanders, Portugal).

CONCLUSIONS: At least two-thirds of people prefer a home death in all but one country studied. The strong association with personal values suggests keeping home care at the heart of cancer EoLC.

Original language	English
Pages (from-to)	2006-15
Number of pages	10
Journal	Annals of Oncology
Volume	23
Issue number	8
DOIs	https://doi.org/10.1093/annonc/mdr602
Publication status	Published - Aug 2012

Keywords / Materials (for Non-textual outputs)

Adolescent
Adult
Aged
Attitude to Death
Cross-Cultural Comparison
Europe
Female
Humans
Interviews as Topic
Male
Middle Aged
Neoplasms
Patient Preference
Questionnaires
Terminally Ill
Young Adult

Access to Document

10.1093/annonc/mdr602

Cite this

on behalf of PRISMA, Gomes, B., Higginson, I. J., Calanzani, N., Cohen, J., Deliens, L., Daveson, B. A., Bechinger-English, D., Bausewein, C., Ferreira, P. L., Toscani, F., Meñaca, A., Gysels, M., Ceulemans, L., Simon, S. T., Pasman, H. R. W., Albers, G., Hall, S., Murtagh, F. E. M., ... Harding, R. (2012). Preferences for place of death if faced with advanced cancer: a population survey in England, Flanders, Germany, Italy, the Netherlands, Portugal and Spain. Annals of Oncology, 23(8), 2006-15. https://doi.org/10.1093/annonc/mdr602

@article{2100de5946504a5d8f0224eb6cb1398f,

title = "Preferences for place of death if faced with advanced cancer: a population survey in England, Flanders, Germany, Italy, the Netherlands, Portugal and Spain",

abstract = "BACKGROUND: Cancer end-of-life care (EoLC) policies assume people want to die at home. We aimed to examine variations in preferences for place of death cross-nationally.METHODS: A telephone survey of a random sample of individuals aged ≥16 in England, Flanders, Germany, Italy, the Netherlands, Portugal and Spain. We determined where people would prefer to die if they had a serious illness such as advanced cancer, facilitating circumstances, personal values and experiences of illness, death and dying.RESULTS: Of 9344 participants, between 51% (95% CI: 48% to 54%) in Portugal and 84% (95% CI: 82% to 86%) in the Netherlands would prefer to die at home. Cross-national analysis found there to be an influence of circumstances and values but not of experiences of illness, death and dying. Four factors were associated with a preference for home death in more than one country: younger age up to 70+ (Germany, the Netherlands, Portugal, Spain), increased importance of dying in the preferred place (England, Germany, Portugal, Spain), prioritizing keeping a positive attitude (Germany, Spain) and wanting to involve family in decisions if incapable (Flanders, Portugal).CONCLUSIONS: At least two-thirds of people prefer a home death in all but one country studied. The strong association with personal values suggests keeping home care at the heart of cancer EoLC.",

keywords = "Adolescent, Adult, Aged, Attitude to Death, Cross-Cultural Comparison, Europe, Female, Humans, Interviews as Topic, Male, Middle Aged, Neoplasms, Patient Preference, Questionnaires, Terminally Ill, Young Adult",

author = "{on behalf of PRISMA} and B Gomes and Higginson, {I J} and N Calanzani and J Cohen and L Deliens and Daveson, {B A} and D Bechinger-English and C Bausewein and Ferreira, {P L} and F Toscani and A Me{\~n}aca and M Gysels and L Ceulemans and Simon, {S T} and Pasman, {H R W} and G Albers and S Hall and Murtagh, {F E M} and Haugen, {D F} and J Downing and J Koffman and F Pettenati and S Finetti and B Antunes and R Harding",

year = "2012",

month = aug,

doi = "10.1093/annonc/mdr602",

language = "English",

volume = "23",

pages = "2006--15",

journal = "Annals of Oncology",

issn = "0923-7534",

publisher = "Elsevier",

number = "8",

}

on behalf of PRISMA, Gomes, B, Higginson, IJ, Calanzani, N, Cohen, J, Deliens, L, Daveson, BA, Bechinger-English, D, Bausewein, C, Ferreira, PL, Toscani, F, Meñaca, A, Gysels, M, Ceulemans, L, Simon, ST, Pasman, HRW, Albers, G, Hall, S, Murtagh, FEM, Haugen, DF, Downing, J, Koffman, J, Pettenati, F, Finetti, S, Antunes, B & Harding, R 2012, 'Preferences for place of death if faced with advanced cancer: a population survey in England, Flanders, Germany, Italy, the Netherlands, Portugal and Spain', Annals of Oncology, vol. 23, no. 8, pp. 2006-15. https://doi.org/10.1093/annonc/mdr602

TY - JOUR

T1 - Preferences for place of death if faced with advanced cancer

T2 - a population survey in England, Flanders, Germany, Italy, the Netherlands, Portugal and Spain

AU - on behalf of PRISMA

AU - Gomes, B

AU - Higginson, I J

AU - Calanzani, N

AU - Cohen, J

AU - Deliens, L

AU - Daveson, B A

AU - Bechinger-English, D

AU - Bausewein, C

AU - Ferreira, P L

AU - Toscani, F

AU - Meñaca, A

AU - Gysels, M

AU - Ceulemans, L

AU - Simon, S T

AU - Pasman, H R W

AU - Albers, G

AU - Hall, S

AU - Murtagh, F E M

AU - Haugen, D F

AU - Downing, J

AU - Koffman, J

AU - Pettenati, F

AU - Finetti, S

AU - Antunes, B

AU - Harding, R

PY - 2012/8

Y1 - 2012/8

N2 - BACKGROUND: Cancer end-of-life care (EoLC) policies assume people want to die at home. We aimed to examine variations in preferences for place of death cross-nationally.METHODS: A telephone survey of a random sample of individuals aged ≥16 in England, Flanders, Germany, Italy, the Netherlands, Portugal and Spain. We determined where people would prefer to die if they had a serious illness such as advanced cancer, facilitating circumstances, personal values and experiences of illness, death and dying.RESULTS: Of 9344 participants, between 51% (95% CI: 48% to 54%) in Portugal and 84% (95% CI: 82% to 86%) in the Netherlands would prefer to die at home. Cross-national analysis found there to be an influence of circumstances and values but not of experiences of illness, death and dying. Four factors were associated with a preference for home death in more than one country: younger age up to 70+ (Germany, the Netherlands, Portugal, Spain), increased importance of dying in the preferred place (England, Germany, Portugal, Spain), prioritizing keeping a positive attitude (Germany, Spain) and wanting to involve family in decisions if incapable (Flanders, Portugal).CONCLUSIONS: At least two-thirds of people prefer a home death in all but one country studied. The strong association with personal values suggests keeping home care at the heart of cancer EoLC.

AB - BACKGROUND: Cancer end-of-life care (EoLC) policies assume people want to die at home. We aimed to examine variations in preferences for place of death cross-nationally.METHODS: A telephone survey of a random sample of individuals aged ≥16 in England, Flanders, Germany, Italy, the Netherlands, Portugal and Spain. We determined where people would prefer to die if they had a serious illness such as advanced cancer, facilitating circumstances, personal values and experiences of illness, death and dying.RESULTS: Of 9344 participants, between 51% (95% CI: 48% to 54%) in Portugal and 84% (95% CI: 82% to 86%) in the Netherlands would prefer to die at home. Cross-national analysis found there to be an influence of circumstances and values but not of experiences of illness, death and dying. Four factors were associated with a preference for home death in more than one country: younger age up to 70+ (Germany, the Netherlands, Portugal, Spain), increased importance of dying in the preferred place (England, Germany, Portugal, Spain), prioritizing keeping a positive attitude (Germany, Spain) and wanting to involve family in decisions if incapable (Flanders, Portugal).CONCLUSIONS: At least two-thirds of people prefer a home death in all but one country studied. The strong association with personal values suggests keeping home care at the heart of cancer EoLC.

KW - Adolescent

KW - Adult

KW - Aged

KW - Attitude to Death

KW - Cross-Cultural Comparison

KW - Europe

KW - Female

KW - Humans

KW - Interviews as Topic

KW - Male

KW - Middle Aged

KW - Neoplasms

KW - Patient Preference

KW - Questionnaires

KW - Terminally Ill

KW - Young Adult

U2 - 10.1093/annonc/mdr602

DO - 10.1093/annonc/mdr602

M3 - Article

C2 - 22345118

SN - 0923-7534

VL - 23

SP - 2006

EP - 2015

JO - Annals of Oncology

JF - Annals of Oncology

IS - 8

ER -

Preferences for place of death if faced with advanced cancer: a population survey in England, Flanders, Germany, Italy, the Netherlands, Portugal and Spain

Abstract

Keywords / Materials (for Non-textual outputs)

Access to Document

Fingerprint

Cite this