Projects per year
Abstract / Description of output
Blog piece analysing the stealth acquisition of citizens' personal genetic real estate by companies and governments. Considers the ethical tensions arising between the desire to progress innovations in personalised medicine and the need to recognise the societal risks and implications and respect privacy and consent. Highlights the importance of transparency and public engagement in moving forward.
| Original language | English |
|---|---|
| Type | Article |
| Media of output | Online |
| Publisher | LinkedIn Publishing |
| Publication status | Published - 26 Mar 2015 |
Fingerprint
Dive into the research topics of 'Privacy, data science and personalised medicine. Time for a balanced discussion'. Together they form a unique fingerprint.Projects
- 1 Active
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Health Data Dilemmas: Ethical Benefits and Risks: (Data Ethics, AI and Responsible Innovation)
Pagliari, C., 19 Dec 2019Research output: Non-textual form › Digital or Visual Products
Open Access -
Should Individuals Share Their Genomic Profiles? Researchers and patient advocates wrestle with privacy and ethical concerns
Tibbetts, J. & Pagliari, C., Sept 2018, In: BioScience. 68, 9Research output: Contribution to journal › Comment/debate
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Transparency in the marketing of direct-to-consumer genetic tests
Pagliari, C., Hall, J. & Amato, J., 20 May 2016.Research output: Contribution to conference › Abstract › peer-review
Activities
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NHS Digital Academy Module on Citizen-Centred Digital Health
Claudia Pagliari (Lecturer)
2018 → …Activity: Other activity types › Types of Business and Community - Continuing Professional Development (CPD)/Training
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Electronic Genetic Profiling: Society and Ethics
Claudia Pagliari (Speaker)
21 Aug 2008Activity: Other activity types › Types of Public engagement and outreach - Festival/Exhibition