Proposal for establishment of the UK Cranial Reconstruction Registry (UKCRR)

Angelos G. Kolias, Diederik O. Bulters, Christopher J. Cowie, Mark H. Wilson, Fardad T. Afshari, Adel Helmy, Ellie Broughton, Alexis J. Joannides, Bassel Zebian, Stuart E. Harrisson, Ciaran S. Hill, Animul I. Ahmed, Damiano G. Barone, Bhaskar Thakur, Catherine J. McMahon, David M. Adlam, Robert P. Bentley, Christos M. Tolias, Patrick M. Mitchell, Peter C. WhitfieldGiles R. Critchley, Antonio Belli, Paul M. Brennan, Peter J. Hutchinson, British Neurosurgical Trainee Res, British Neurotrauma Grp, UKCRR Collaborative Grp

Research output: Contribution to journalArticlepeer-review

Abstract

Background. The increasing utilisation of decompressive craniectomy for traumatic brain injury and stroke has led to an increase in the number of cranioplasties undertaken. Cranioplasty is also undertaken following excision of tumours originating from or invading the skull vault, removal of bone flaps due to post-operative infection, and decompressive craniectomy for the management of rarer causes of brain oedema and/or refractory intracranial hypertension. The existing literature which mainly consists of single-centre, retrospective studies, shows a significant variation in practice patterns and a wide range of morbidity. There also exists a need to measure the outcome as perceived by the patients themselves with patient reported outcome measures (PROMs; functional outcome, quality of life, satisfaction with cosmesis). In the UK, the concept of long-term surveillance of neurosurgical implants is well established with the UK shunt registry. Based on this background, we propose to establish the UK Cranial Reconstruction Registry (UKCRR). Aim. The overarching aim of the UKCRR is to collect high-quality data about cranioplasties undertaken across the UK and Ireland in order to improve outcomes for patients. Methods. Any patient undergoing reconstruction of the skull vault with autologous bone, titanium, or synthetic material in participating units will be eligible for inclusion. Data will be submitted directly by participating units to the Outcome Registry Intervention and Operation Network secure platform. A Steering Committee will be responsible for overseeing the strategic direction and running of the UKCRR. Outcome measures. These will include re-operation due to a cranioplasty-related issue, surgical site infection, re-admission due to a cranioplasty-related issue, unplanned post-operative escalation of care, adverse events, length of stay in admitting unit, destination at discharge from admitting unit, mortality at discharge from admitting unit, neurological status and PROMs during routine follow-up. Conclusion. The UKCRR will be an important pillar in the ongoing efforts to optimise the outcomes of patients undergoing cranioplasty.
Original languageEnglish
Pages (from-to)310-314
Number of pages5
JournalBritish Journal of Neurosurgery
Volume28
Issue number3
DOIs
Publication statusPublished - Jun 2014

Keywords

  • cranioplasty
  • decompressive craniectomy
  • stroke
  • surveillance
  • traumatic brain injury
  • DEATH FOLLOWING CRANIOPLASTY
  • TRAUMATIC BRAIN-INJURY
  • DECOMPRESSIVE CRANIECTOMY
  • TITANIUM CRANIOPLASTY
  • CLINICAL ARTICLE
  • HEAD-INJURY
  • COMPLICATIONS
  • HEMICRANIECTOMY
  • STROKE
  • SCALE

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