Projects per year
Abstract / Description of output
This report describes the results of a consultation exercise undertaken for the Scottish Government as part of its consultation for a proposed 'Scotland-wide Data Linkage Framework for Statistics and Research' (Scottish Government 2012) and a set of ‘Guiding Principles’ for linkage. They commissioned Ipsos MORI Scotland and social reseachers Dr Claudia Pagliari and Professor Sarah Cunningham-Burley from the University of Edinburgh, to undertake a series of public deliberative events. The aim was to explore the views of the public on the acceptability of linking personal data for statistical and research purposes, thereby identifying particular sensitivities and potential barriers to public confidence and exploring mechanisms for overcoming concerns.
Original language | English |
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Place of Publication | Edinburgh |
Publisher | Scottish Government |
Commissioning body | Scottish Government |
ISBN (Electronic) | 978 1 78256 014 2 |
Publication status | Published - 2012 |
Publication series
Name | Social Research series |
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ISSN (Print) | 2045-6964 |
Keywords / Materials (for Non-textual outputs)
- Data sharing
- PUBLIC AWARENESS
- public acceptance
- digital society
- digital economy
- ethics
- Research infrastructure
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Administrative Data Research Centre - Scotland
Pagliari, C., Cunningham-Burley, S. & Dibben, C.
1/11/13 → 31/10/18
Project: Research
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MRC: The Scottish eHealth Informatics Research Centre
Cunningham-Burley, S. & Sheikh, A.
1/03/13 → 31/12/18
Project: Research
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Health Data Dilemmas: Ethical Benefits and Risks: (Data Ethics, AI and Responsible Innovation)
Pagliari, C., 19 Dec 2019Research output: Non-textual form › Digital or Visual Products
Open Access -
Public Acceptability of Data Sharing Between the Public, Private and Third Sectors for Research Purposes
Davidson, S., MCLEAN, C., Treanor, S., Aitken, M., Cunningham-Burley, S., Laurie, G., Pagliari, C. & Sethi, N., 2013, Scottish Government. (Social Research series)Research output: Book/Report › Book
Open AccessFile -
Legal and ethico-legal issues in e-healthcare research projects in the UK
McCubbin, C. & Pagliari, C., Jun 2006, In: Social Science & Medicine. 62, 11, p. 2768–2773 6 p.Research output: Contribution to journal › Article › peer-review