Rare cancers are not so rare: the rare cancer burden in Europe

RARECARE working group, Gemma Gatta, Jan Maarten van der Zwan, Paolo G Casali, Sabine Siesling, Angelo Paolo Dei Tos, Ian Kunkler, Renée Otter, Lisa Licitra, Sandra Mallone, Andrea Tavilla, Annalisa Trama, Riccardo Capocaccia

Research output: Contribution to journalArticlepeer-review


Epidemiologic information on rare cancers is scarce. The project Surveillance of Rare Cancers in Europe (RARECARE) provides estimates of the incidence, prevalence and survival of rare cancers in Europe based on a new and comprehensive list of these diseases.
Original languageEnglish
Pages (from-to)2493-511
Number of pages19
JournalEuropean journal of cancer (Oxford, England : 1990)
Issue number17
Publication statusPublished - Nov 2011


  • Adolescent
  • Adult
  • Aged
  • Aged, 80 and over
  • Child
  • Child, Preschool
  • Europe
  • Female
  • Humans
  • Incidence
  • Infant
  • Infant, Newborn
  • Male
  • Middle Aged
  • Neoplasms
  • Prevalence
  • Rare Diseases
  • Registries
  • Survival Analysis
  • Young Adult


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