@article{406633baf9474785bd4226749781282a,
title = "The impact of raising a child with a developmental or physical health condition in Ethiopia",
abstract = "Objective Raising a child with a developmental disability or physical health condition can have a major impact on the lives of their families, especially in low-income countries. We explored the impact on such families in Ethiopia. Study design A total of 241 child-caregiver dyads were recruited from two public hospitals in Addis Ababa, Ethiopia. Of these, 139 children were diagnosed with a developmental disability (e.g. autism, intellectual disability) and 102 children with a physical health condition (e.g. malnutrition, severe HIV infection). The family quality of life was assessed using caregiver reports on the Pediatric Quality of Life Inventory{\texttrademark} (PedsQL-FIM{\texttrademark}). The disability weight score, which is a Global Burden of Disease measure to quantify health loss, was estimated for each child. Results Families with a child with a developmental disability reported lower quality of life than families caring for a child with a physical health condition (p ",
keywords = "Africa, Developing countries, Autism, Neurodevelopmental disorders, Quality of life, Family functioning and support",
author = "{de Leeuw}, Anne and Ester, {Wietske A.} and Mersha Kinfe and Fikirte Girma and Rehana Abdurahman and Tigist Zerihun and Atsede Teklehaimanot and Charlotte Hanlon and Hoek, {Hans W.} and Hoekstra, {Rosa A.}",
note = "Funding Information: This work was supported by funding from four United Kingdom organizations: the Medical Research Council (MRC), the Department for International Development (DFID), the Welcome Trust, and the National Institute for Health Research (NIHR) (#MR/P020844/1). FG, RA, TZ, CH and RAH are supported by funding from the National Institute for Health and Care Research (NIHR200842) and CH also through NIHR134325 using UK aid from the UK government. The views expressed in this publication are those of the authors and not necessarily those of the NIHR or the UK Department of Health and Social Care. CH is also funded by the Welcome Trust through grants 222154/Z20/Z (SCOPE) and 223615/Z/21/Z (PROMISE). For the purpose of open access, the author(s) has applied a Creative Commons Attribution (CC BY) licence to any Author Accepted Manuscript version arising. Publisher Copyright: {\textcopyright} 2024 The Authors M1 - 104716",
year = "2024",
month = mar,
day = "15",
doi = "10.1016/j.ridd.2024.104716",
language = "English",
volume = "148",
journal = "Research in Developmental Disabilities",
issn = "0891-4222",
publisher = "Elsevier",
}