Projects per year
Abstract / Description of output
Technological advances in the quality, availability and linkage potential of health data for research make the need to develop robust and effective information governance mechanisms more pressing than ever before; they also lead us to question the utility of governance devices used hitherto such as consent and anonymisation. This article assesses and advocates a principles-based approach, contrasting this with traditional rule-based approaches, and proposes a model of principled proportionate governance. It is suggested that the approach not only serves as the basis for good governance in contemporary data linkage but also that it provides a platform to assess legal reforms such as the draft Data Protection Regulation.
|Article number||PMID: 24416087|
|Journal||European Journal of Risk Regulation|
|Publication status||Published - 2013|
Keywords / Materials (for Non-textual outputs)
- information governance
- Health research
- data linkage
- principles based regulation
FingerprintDive into the research topics of 'Towards Principles-Based Approaches to Governance of Health-Related Research Using Personal Data'. Together they form a unique fingerprint.
- 1 Finished