Value of Personal Health Records for Patients, Citizens & Science

Research output: Other contribution

Abstract / Description of output

Commentary triggered by the rollback of the requirement for US health organisations to demonstrate patient engagement with electronic health records as a condition for HITICH incentive payments. Reflects on the 'uncomfortable truth' of low uptake of Personal Health Records (PHR) and calls for new research to better understand which where and for which patients the benefits are most likely to be felt. Emphasises the importance of continuing to make these systems available in order to enable citizens to exercise their digital rights, even if many of us choose not to use them. Also considers the potential for emerging personal digital health tools to augment PHR and to provide better insights about their use and effectiveness.
Original languageEnglish
Media of outputOnline
PublisherLinkedIn Publishing
Publication statusPublished - 19 Apr 2015

Keywords / Materials (for Non-textual outputs)

  • Personal Health Records
  • Electronic Health Records
  • Patient Engagement
  • Digital Health
  • Data Rights
  • Digital Society
  • Health Informatics


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