What can we learn about health and healthcare from large-scale, routinely-acquired data in the United Kingdom: studies in fragile X syndrome

A. G. McKechanie; A. C. Stanfield; L. Fisher; C. L. I. Morgan; B I Jones; A. Cooper; P. Conway

doi:10.1111/jir.13174

What can we learn about health and healthcare from large-scale, routinely-acquired data in the United Kingdom: studies in fragile X syndrome

A. G. McKechanie, A. C. Stanfield, L. Fisher, C. L. I. Morgan, B I Jones, A. Cooper, P. Conway

Research output: Contribution to journal › Meeting abstract › peer-review

Original language	English
Pages (from-to)	1020-1021
Number of pages	2
Journal	Journal of Intellectual Disability Research
Volume	68
Issue number	9
Early online date	22 Aug 2024
DOIs	https://doi.org/10.1111/jir.13174
Publication status	Published - Sept 2024
Event	The 26th SSBP Educational Day and International Research Symposium: Early identification and treatment of genetic and neurodevelopmental disorders - Grand Hyatt Bali, Bali, Indonesia Duration: 5 Sept 2024 → 7 Sept 2024 https://ssbp.org.uk/about-ssbp-2024/

Keywords / Materials (for Non-textual outputs)

Data linkage
Epidemiology
fragile X syndrome
Healthcare utilisation
Mortality

Access to Document

10.1111/jir.13174

Cite this

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title = "What can we learn about health and healthcare from large-scale, routinely-acquired data in the United Kingdom: studies in fragile X syndrome",

keywords = "Data linkage, Epidemiology, fragile X syndrome, Healthcare utilisation, Mortality",

author = "McKechanie, {A. G.} and Stanfield, {A. C.} and L. Fisher and Morgan, {C. L. I.} and Jones, {B I} and A. Cooper and P. Conway",

year = "2024",

month = sep,

doi = "10.1111/jir.13174",

language = "English",

volume = "68",

pages = "1020--1021",

journal = "Journal of Intellectual Disability Research",

issn = "0964-2633",

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note = "The 26th SSBP Educational Day and International Research Symposium : Early identification and treatment of genetic and neurodevelopmental disorders, SSBP 2024 ; Conference date: 05-09-2024 Through 07-09-2024",

url = "https://ssbp.org.uk/about-ssbp-2024/",

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TY - JOUR

T1 - What can we learn about health and healthcare from large-scale, routinely-acquired data in the United Kingdom

T2 - The 26th SSBP Educational Day and International Research Symposium

AU - McKechanie, A. G.

AU - Stanfield, A. C.

AU - Fisher, L.

AU - Morgan, C. L. I.

AU - Jones, B I

AU - Cooper, A.

AU - Conway, P.

PY - 2024/9

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KW - Data linkage

KW - Epidemiology

KW - fragile X syndrome

KW - Healthcare utilisation

KW - Mortality

U2 - 10.1111/jir.13174

DO - 10.1111/jir.13174

M3 - Meeting abstract

SN - 0964-2633

VL - 68

SP - 1020

EP - 1021

JO - Journal of Intellectual Disability Research

JF - Journal of Intellectual Disability Research

IS - 9

Y2 - 5 September 2024 through 7 September 2024

ER -