TY - JOUR
T1 - What innovative practices and processes are used to deliver psychosocial care in India?
T2 - A qualitative case study of three non-profit community mental health organisations
AU - Srinivasan, Varadharajan
AU - Jain, Sumeet
AU - Kwon, Winston
AU - Bayetti, Clement
AU - Cherian, Anish V.
AU - Mathias, Kaaren
N1 - Funding Information:
Burans is based in Uttarakhand state, a region with below average health indices and poor provision for primary healthcare and mental health (Schneider et al., 2019). Non-profit healthcare provider Emmanuel Hospital Association, under the leadership of public health physician Dr. Kaaren Mathias, founded Burans in 2014 as an initiative to promote mental health in Uttarakhand through collaborative alliances with local non-profit community health and development organizations. While its mission is to work with local disadvantaged communities, its strategy is to leverage local knowledge by working with local partners to strengthen their resources and capabilities (Mathias et al., 2018)for community mental health and wellbeing rather than direct intervention. Burans’ interventions in CMH include: the formation of psycho-social support groups; implementing resilience programmes among young people; and capacity building for mental health services and social inclusion within the existing public health care system, supported by robust documentation and research.These organizations engage with the community through several common elements: i) advocacy and local action, ii) use of public spaces, and iii) involvement of families and peers. Community groups are organized to promote local action on CMH issues and to provide peer counselling support. A multiplicity of local community spaces – including clients’ homes, temples, as well as available space in public buildings such as urban health centres and police stations – are creatively employed to deliver clinical care. They engage families and peers in the caregiving process. IS for example, recruits concerned neighbours to take on caregiving responsibilities such as giving medicine and providing hygiene care to local homeless individuals with psychosocial disabilities (referred to as PPSD hereafter). This empowers individuals with lived experience by granting a level of legitimacy that is equal to formal knowledge. These ongoing processes provide feedback on community concerns and priorities, as well as raising awareness of and reducing stigma around mental health issues.These organizations share a strategy of broadening good care outcomes. Rather than focusing on the short-term treatment of symptoms as defined by conventional state and mainstream NGO approaches, they have independently arrived at a redefinition of what a good care outcome is. By expanding their respective operational emphases to support clients on a full recovery journey, their process of client engagement begins with the diagnosis and treatment of acute symptoms, and extends to reintegration back into society, which is necessarily a lengthy and non-linear process. Recovery is premised on social inclusion and involves: i) providing pastoral support and ii) developing employment opportunities for clients. These organizations have developed support activities including supporting devotional practices across different religious groups in Burans and creating day care facilities at IS to allow carers to continue full-time employment. Their activities extend developing clients’ employability skills and paid employment opportunities for their clients through activities such as in-house social enterprises and microfinance loans to enable self-employment.Given the lesser priority that CMH receives relative to other public health issues, government organizations and NGOs often struggle with funding issues. A particularly salient finding was how these organizations developed creative approaches for resourcing operations. While much of their CMH provision is funded through government subsidies and grants, these organizations have developed configurations of cash and in-kind resources from non-government sources including: i) rent-free venues, ii) pro-bono expertise and drugs, and iii) community donations. MHAT operates their rotating bi-weekly clinics from village hospices and public health centres. Burans and IS employ a variety of government and community spaces during off-hours to run their activities. Crucial to Burans is their reliance on coordination and cooperation with government health care workers and the staff of other NGOs to promote and support many of their outreach activities. Psychiatrists provide pro-bono visits on behalf of IS while MHAT is partially supported by donations of drugs from pharmaceutical companies. They benefit from monetary and non-monetary donations from the local community and grants from foundations.These organizations expand the ‘care team’ beyond mental health professionals to include groups already providing informal care, including families, neighbours, former clients, and other parts of the state healthcare system. Their respective roles are extended and redefined by capacitating them in ways that go far beyond existing models of task shifting and task sharing. As has been observed (Mapanga et al., 2019; Nunley, 1998) families play a central but informal role in the provision of community care provision in India, there is also clear evidence that communities can play a positive role in supporting PPSDs.11 This is why many state CMH programmes will only accept someone as a client if they are accompanied by a family member or other responsible person (Nunley, 1998).As the care team expands, so do the places where care is delivered. IS engages neighbours to provide care in community spaces where homeless people are part of the social landscape, while MHAT supports families and community volunteers as carers, and Burans employs workers from local communities to engage PPSD and provide care and support. These shifts are predicated on an understanding that family, neighbours, and other community members are best placed to deliver care in local places that are accessible and inclusive.As a field, CMH has long struggled with resourcing due to perceptions of legitimacy, urgency, and importance. This study reveals three distinctive yet broadly similar ways in which CMH initiatives can be supported by alternative means. Whether this is the free use of community buildings, pro-bono professional services, in-kind donations from client families, the time of community volunteers or cross-subsidization from fee-paying activities, IS built upon pre-existing care routines already provided to people on the street by local shopkeepers and family members. MHAT used an existing network of community palliative care centres and volunteers. Operating in a context of scarce resource Burans empowered local volunteers to directly provide psychosocial care and support within family and community spaces.We thank the organizations and their staff involved in this research. This work was supported by the Wellcome Trust via an Institutional Strategic Support Fund awarded to the University of Edinburgh [Grant no. 204804/Z/16/Z].
Funding Information:
Given the lesser priority that CMH receives relative to other public health issues, government organizations and NGOs often struggle with funding issues. A particularly salient finding was how these organizations developed creative approaches for resourcing operations. While much of their CMH provision is funded through government subsidies and grants, these organizations have developed configurations of cash and in-kind resources from non-government sources including: i) rent-free venues, ii) pro-bono expertise and drugs, and iii) community donations. MHAT operates their rotating bi-weekly clinics from village hospices and public health centres. Burans and IS employ a variety of government and community spaces during off-hours to run their activities. Crucial to Burans is their reliance on coordination and cooperation with government health care workers and the staff of other NGOs to promote and support many of their outreach activities. Psychiatrists provide pro-bono visits on behalf of IS while MHAT is partially supported by donations of drugs from pharmaceutical companies. They benefit from monetary and non-monetary donations from the local community and grants from foundations.
Publisher Copyright:
© 2023
PY - 2023/12/15
Y1 - 2023/12/15
N2 - The global mental health field seeks to close the “treatment gap” for mental illness in low-and middle-income countries by scaling evidence-based interventions. The evidence base has often bypassed psychosocial interventions by local organizations who do not fit a biomedical approach to evidence building. In India, non-profit mental health organizations are addressing care gaps through novel approaches that emphasize social recovery and inclusion.This study seeks to better understand the nature and dynamic of this innovation by examining what was working well in the practices and processes of three such community mental health care organizations. A comparative case approach was chosen for its strength as an exploratory means for inductive theory building. Three case organizations in Kerala, West Bengal and Uttarakhand states were selected based on their diverse socio-cultural and health systems settings. Qualitative data was collected in 2018–20, to examine their practices and processes using mixed methods and data sources including interviews, focus groups, participant observation and document analysis.Common strategies observed across the three organizations, included engaging community, prioritising beneficiaries, co-opting resources, devolving care, reorganising communication and recovery and integration. These strategies were further categorized into three domains: constructing a sustainable resource base, managing knowledge and redefining meanings. In contrast with conventional problem-solving approaches, these cases used an approach that built on assets and strengths using inclusive governance which enabled coordination of the community health system.This study argues that these organizations incorporate reflexive practice and two-way flows of knowledge to enable them to address complex social determinants of mental health. This has implications for how psychosocial care in CMH is conceptualized. We argue that the ways the organizations respond to the complexities of mental health difficulties contributes to reframing mental health as a social development issue, centering inclusion of people with psychosocial disabilities. Our findings argue against a polarization between biomedical and psychosocial CMH models and illustrate ways of integrating both approaches and their centrality to effective mental health care.
AB - The global mental health field seeks to close the “treatment gap” for mental illness in low-and middle-income countries by scaling evidence-based interventions. The evidence base has often bypassed psychosocial interventions by local organizations who do not fit a biomedical approach to evidence building. In India, non-profit mental health organizations are addressing care gaps through novel approaches that emphasize social recovery and inclusion.This study seeks to better understand the nature and dynamic of this innovation by examining what was working well in the practices and processes of three such community mental health care organizations. A comparative case approach was chosen for its strength as an exploratory means for inductive theory building. Three case organizations in Kerala, West Bengal and Uttarakhand states were selected based on their diverse socio-cultural and health systems settings. Qualitative data was collected in 2018–20, to examine their practices and processes using mixed methods and data sources including interviews, focus groups, participant observation and document analysis.Common strategies observed across the three organizations, included engaging community, prioritising beneficiaries, co-opting resources, devolving care, reorganising communication and recovery and integration. These strategies were further categorized into three domains: constructing a sustainable resource base, managing knowledge and redefining meanings. In contrast with conventional problem-solving approaches, these cases used an approach that built on assets and strengths using inclusive governance which enabled coordination of the community health system.This study argues that these organizations incorporate reflexive practice and two-way flows of knowledge to enable them to address complex social determinants of mental health. This has implications for how psychosocial care in CMH is conceptualized. We argue that the ways the organizations respond to the complexities of mental health difficulties contributes to reframing mental health as a social development issue, centering inclusion of people with psychosocial disabilities. Our findings argue against a polarization between biomedical and psychosocial CMH models and illustrate ways of integrating both approaches and their centrality to effective mental health care.
KW - social innovation
KW - community mental health
KW - psychosocial approach
KW - mental health care
KW - social inclusion
KW - India
U2 - 10.1016/j.ssmmh.2023.100220
DO - 10.1016/j.ssmmh.2023.100220
M3 - Article
SN - 2666-5603
VL - 4
JO - SSM - Mental Health
JF - SSM - Mental Health
M1 - 100220
ER -