Abstract / Description of output
Even though miscarriages are a common experience, there remains a discrepancy between the information needed after a pregnancy is lost and the information received. We explored the reasons for this gap as part of an eight-week online study with 42 participants who experienced a miscarriage. Common online sources of information were forums, blogs, and Facebook. Participants were interested in general information about miscarriage, counselling resources, others’ experiences, and information from health care providers. Barriers to information access were both external (e.g., diffculty locating resources) and internal (e.g., self-blame or stigma). We map these information needs and barriers to a generalized miscarriage timeline crafted from participants’ individual experiences and discuss implications for the design of sociotechnical systems to support people through miscarriage and beyond.
Original language | English |
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Title of host publication | Proceedings of the 14th EAI International Conference on Pervasive Computing Technologies for Healthcare 2020 |
Publisher | Association for Computing Machinery (ACM) |
Pages | 85-96 |
Number of pages | 12 |
ISBN (Print) | 9781450375320 |
DOIs | |
Publication status | Published - 18 May 2020 |
Event | 14th EAI International Conference on Pervasive Computing Technologies for Healthcare - Online, United States Duration: 6 Oct 2020 → 8 Oct 2020 Conference number: 14 http://pervasivehealth.org/ |
Conference
Conference | 14th EAI International Conference on Pervasive Computing Technologies for Healthcare |
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Abbreviated title | PervasiveHealth |
Country/Territory | United States |
City | Online |
Period | 6/10/20 → 8/10/20 |
Internet address |
Keywords / Materials (for Non-textual outputs)
- miscarriage
- resource needs
- sociotechnical systems