What to Expect When You are No Longer Expecting: Information Needs of Women who Experienced a Miscarriage

K. Cassie Kresnye, Mona Alqassim, Briana Hollins, Maria Wolters, Katie A. Siek

Research output: Chapter in Book/Report/Conference proceedingConference contribution

Abstract

Even though miscarriages are a common experience, there remains a discrepancy between the information needed after a pregnancy is lost and the information received. We explored the reasons for this gap as part of an eight-week online study with 42 participants who experienced a miscarriage. Common online sources of information were forums, blogs, and Facebook. Participants were interested in general information about miscarriage, counselling resources, others’ experiences, and information from health care providers. Barriers to information access were both external (e.g., diffculty locating resources) and internal (e.g., self-blame or stigma). We map these information needs and barriers to a generalized miscarriage timeline crafted from participants’ individual experiences and discuss implications for the design of sociotechnical systems to support people through miscarriage and beyond.
Original languageEnglish
Title of host publicationProceedings of the 14th EAI International Conference on Pervasive Computing Technologies for Healthcare 2020
PublisherAssociation for Computing Machinery (ACM)
Pages85-96
Number of pages12
ISBN (Print)9781450375320
DOIs
Publication statusPublished - 18 May 2020
Event14th EAI International Conference on Pervasive Computing Technologies for Healthcare - Online, United States
Duration: 6 Oct 20208 Oct 2020
Conference number: 14
http://pervasivehealth.org/

Conference

Conference14th EAI International Conference on Pervasive Computing Technologies for Healthcare
Abbreviated titlePervasiveHealth
CountryUnited States
CityOnline
Period6/10/208/10/20
Internet address

Keywords

  • miscarriage
  • resource needs
  • sociotechnical systems

Fingerprint

Dive into the research topics of 'What to Expect When You are No Longer Expecting: Information Needs of Women who Experienced a Miscarriage'. Together they form a unique fingerprint.

Cite this