Edinburgh Research Explorer

Speaker : 12th World Congress of Bioethics

Activity: Participating in or organising an event typesParticipation in conference

Speaker

26 Jun 2014

Abstract

Presentation with Aisling McMahon: 'Banking (On) The Brain: From Consent to Authorisation and the Transformative Potential of Solidarity' Modern technologies and ambitions for biomedicine have resulted in the rise of new models of medical research, including population biobanking. One example of biobanking is brain banking, which refers to the collection and storage of brain and spinal cord samples for research into neurological diseases intended to benefit individuals and society more broadly. Obviously, brain banking involves taking brains and tissue from deceased people, a fact which complicates the task of recruiters and which makes consent a relatively poor tool for stakeholders. This paper will contextualise brain banking, considering the public health issues at stake. It will then explore the legal definitions and demands of , and actual processes around, 'consent' in England/Wales/Northern Ireland and 'authorisation' in Scotland, articulating and evaluating their conceptual and practical differences. It then argues for an expanded but improved operation of ‘authorisation’ in the brain banking (and broader biobanking) setting, adopting the socio-moral value of ‘solidarity’ as our foundation and the improvement of the ‘public good’ as our legitimate objective.

Attending event

12th World Congress of Bioethics

Duration25 Jun 201428 Jun 2014
Location of eventMexico
CityMexico City
CountryMexico
Degree of recognitionInternational event

Event: Conference

ID: 16556701