Edinburgh Research Explorer

Heather Wilkinson

Personal Chair of Dementia Practice and Partnership

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Heather Wilkinson

  • School of Health in Social Science
Postal address:
30-34 Buccleuch Place
Counselling, Psychotherapy & Applied Social Sciences
EH8 9JS
Edinburgh
United Kingdom

Research output

Relational care and co-operative endeavour: Reshaping dementia care through participatory secondary data analysis

Clarke, C., Wilcockson, J., Watson, J., Wilkinson, H., Keyes, S., Kinnaird, L. & Williamson, T., 1 May 2020, In : Dementia. 19, 4, p. 1151-1172 22 p., 147130121879535.

Tackling dementia globally: the Global Dementia Prevention Program (GloDePP) collaboration

Chan, K. Y., Adeloye, D., Asante, K. P., Calia, C., Campbell, H., Danso, S. O., Juvekar, S., Luz, S., Mohan, D., Muniz-terrera, G., Nitrini, R., Noroozian, M., Nulkar, A., Nyame, S., Paralikar, V., Parra Rodriguez, M. A., Poon, A. N., Reidpath, D. D., Rudan, I., Stephan, B. C. & 7 others, Su, T., Wang, H., Watermeyer, T., Wilkinson, H., Yassuda, M. S., Yu, X. & Ritchie, C., 16 Dec 2019, In : Journal of Global Health. 9, 2

Developing evaluation of signage for people with dementia

Gresham, M., Taylor, L., Keyes, S., Wilkinson, H., McIntosh, D. & Cunningham, C., 5 Sep 2019, In : Housing Care and Support.

Safe and inclusive research practices for qualitative research involving people with dementia: A review of key issues and strategies

Wilkinson, H. & Novak, S., 30 Apr 2019, In : Dementia. 18, 3, p. 1042-1059

How practitioner-led research could have greater impact: The importance of considering knowledge mobilisation holistically

Lightowler, C., Stocks-Rankin, C-R. & Wilkinson, H., Nov 2018, In : Evidence and Policy. 14, 4, p. 641-663

A seat around the table: Participatory data analysis with people living with dementia

Clarke, C., Wilkinson, H., Watson, J., Wilcockson, J., Kinnaird, L. & Williamson, T., 1 Jul 2018, In : Qualitative Health Research. 28, 9, p. 1421-1433

The novel use of life grids in a phenomenological study of family carers of people with Profound Intellectual and Multiple Disabilities and Dysphagia

Crawford, H. & Wilkinson, H., 19 Mar 2018, In : Qualitative Health Research. p. 1-8

‘I just want to get on with my life’: A mixed methods study of active management of quality of life in living with dementia

Clarke, C., Wilkinson, H., Keyes, S., Alexjuk, E., Wilcockson, J., Robinson, L., Reynolds, J., McClelland, S., Hodgson, P., Corner, L. & Cattan, M., Feb 2018, In : Ageing and Society. 38, 2, p. 378-402

Thistledown Project: A Short Guide to Ethical Practice and Governance for Ethnographic Research with People who have Dementia

MacLaren, J., Nelson, M., Wilkinson, H. & Taylor, B., 17 Nov 2017, University of Edinburgh. 20 p.

Embedding compassionate care in local NHS practice: Developing a conceptual model through realistic evaluation

MacArthur, J., Wilkinson, H., Gray, M. A. & Matthews-Smith, G., 1 Mar 2017, In : Journal of Research in Nursing. 22, 1-2, p. 130-147 18 p.

"We’re all thrown in the same boat...": A qualitative analysis of peer support in dementia care

Keyes, S., Clarke, C., Wilkinson, H., Alexjuk, J., Wilcockson, J., Robinson, L., Reynolds, J., McClelland, S., Corner, L. & Cattan, M., 1 Jul 2016, In : Dementia. 15, 4, p. 560-577

Daring to tell: The importance of telling others about a diagnosis of dementia

Weaks, D., Wilkinson, H. & McLeod, J., Apr 2015, In : Ageing and Society. 35, 4, p. 1-20

Organisational Space for Partnership and Sustainability: Lessons from the Implementation of the National Dementia Strategy for England.

Clarke, C., Keyes, S., Wilkinson, H., Alexjuk, E. J. J., Wilcockson, J., Robinson, L., Corner, L. & Cattan, M., Nov 2014, In : Health and Social Care in the Community. 22, 6, p. 634–645

Challenging conceptions of integration: sharing the findings of a Practitioner Research Programme on Improving the Care of Older People in Scotland.

Wilkinson, H., 2014, In : Journal of Integrated Care. 22, 3

Planning Ahead: Supporting families to shape the future after a diagnosis of dementia

Wilkinson, H. & Towers, C., 2014, Intellectual Disability and Dementia. Watchman, K. (ed.). London: Jessica Kingsley Publishers, p. 161-183 23 p.

Healthbridge: The National Evaluation of Peer Support Networks and Dementia Advisers in implementation of the National Dementia Strategy for England

Clarke, C., Keyes, S., Wilkinson, H. & Alexjuk, J., 13 Oct 2013, A Department of Health Policy Research Programme Project . Department of Health

Risky and resilient life with dementia: Review of and reflections on the literature

Bailey, C., Clarke, C. L., Gibb, C., Haining, S., Wilkinson, H. & Tiplady, S., 18 Jul 2013, In : Health, Risk & Society. 15, 5, p. 390-401

‘It's What Gets Through People's Radars Isn't It’: Relationships in Social Work Practice and Knowledge Exchange

Smith, M., Wilkinson, H. & Gallagher, M., 23 Jan 2013, In : Contemporary Social Science.

Engaging with Involuntary Service Users in Social Work: Findings from a Knowledge Exchange Project

Smith, M., Gallagher, M., Wosu, H., Stewart, J., Cree, V., Hunter, S., Evans, S., Montgomery, C., Holiday, S. & Wilkinson, H., Dec 2012, In : British Journal of Social Work. 42, 8, p. 1460-1477

A Collaborative Approach to Defining the Usefulness of Impact: Lessons from a Knowledge Exchange Project Involving Academics and Social Work Practitioners

Wilkinson, H., Gallagher, M. & Smith, M., 1 Aug 2012, In : Evidence and Policy. 8, 3, p. 311-327 17 p.

Children and Families' Involvement in Social Work Decision Making

Gallagher, M., Smith, M., Hardy, M. & Wilkinson, H., Jan 2012, In : Children & Society. 26, 1, p. 74-85 12 p.

Supporting the Friendships of People with Dementia

Ward, R., Howorth, M., Wilkinson, H., Campbell, S. & Keady, J., 2012, In : Dementia. 11, 3, p. 287-303

Telling Tales About Dementia: Experiences of Caring

Wilkinson, H., Feb 2011, In : Ageing and Society. 31, p. 350-351 2 p.

Reframing Risk Management in Dementia Care through Collaborative Learning

Clarke, C. L., Wilcockson, J., Gibb, C. E., Keady, J., Wilkinson, H. & Luce, A., Jan 2011, In : Health and Social Care in the Community. 19, 1, p. 23-32 10 p.

Engaging with families in child protection: lessons from practitioner research in Scotland

Michael Gallagher, Smith, M., Wilkinson, H., Cree, V., Helen Wosu, J. Stewart & Scott Hunter, 2011, In : Child Welfare: journal of the Child Welfare League of America. 90, 4, p. 117-134 17 p.

Licensed material - Supporting Derek: Training for Trainers pack

Watchman, K. & Wilkinson, H., 2011, IPC No. ERI approved

Making it Through the Night - the Experience and Impact of Doing Research on Night-Time Care

Wilkinson, H., 2011, Researching Families and Relationships: Reflections on Process. Jamieson, L., Simpson, R. & Lewis, R. (eds.). Palgrave Macmillan, p. 114-116 (Palgrave Macmillan Studies in Family and Intimate Life).

Risk and Dementia Care: Approaches to Everyday Living

Clarke, C., Wilkinson, H., Keady, J. & Gibb, C. E., 2011, Jessica Kingsley.

Dementia and Risk: Contested Territories of Everyday Life

Clarke, C. L., Keady, J., Wilkinson, H., Gibb, C. E., Luce, A., Cook, A. & Williams, L., 2010, In : Journal of Nursing and Healthcare of Chronic Illness. 2, 2, p. 102-112 11 p.

Down's syndrome and dementia: a framework for practice to support people with Down's syndrome and dementia in generic care homes

Watchman, K. & Wilkinson, H., 2010, Supportive Care for the Person with Dementia. Oxford University Press

Providing Good Care at Night for Older People: Practical Approaches for Use in Nursing and Care Homes

Kerr, D. & Wilkinson, H., 2010, Jessica Kingsley. 192 p.

Supporting Derek, a practice development guide to support staff working with people who have a learning difficulty and dementia

Watchman, K. & Wilkinson, H., 2010, University of Edinburgh/Joseph Rowntree Foundation.

Learning Disability Liaison Nursing Services in South East Scotland

McKechanie, A., MacArthur, J., Brown, M., Mack, S., Gibbs, S., Hayes, M., Fletcher, J. & Wilkinson, H., 10 Dec 2009.

Learning Disability Liaison Nursing Services in South East Scotland: A mixed methods impact and outcome research study

MacArthur, J., Brown, M., Fletcher, J., Gibbs, S., Hayes, M., McKechanie, A., Mack, S. & Wilkinson, H., Nov 2009, NHS Lothian Health Services Research Programme. 4 p.

Alcohol-related brain damage: Sharing stories, saving lives

Keady, J., Clarke, C. L. & Wilkinson, H., Oct 2009, In : The Gerontologist. 49, sup2, p. 23-23 1 p.

Risk Management Dilemmas in Dementia Care: An Organizational Survey in Three UK Countries

Clarke, C., Gibb, C., Keady, J., Luce, A., Wilkinson, H., Williams, L. & Cook, A., Jun 2009, In : International Journal of Older People Nursing. 4, 2, p. 89-96 8 p.

People with a Learning Disability and Dysphagia: A Cinderella Population?'

Leslie, P., Crawford, H. & Wilkinson, H., Mar 2009, In : Dysphagia. 24, 1, p. 103-104 2 p.

Alcohol-Related Brain Damage: Narrative Storylines and Risk Constructions

Keady, J., Clarke, C. L., Wilkinson, H., Gibb, C. E., Williams, L., Luce, A. & Cook, A., 2009, In : Health, Risk & Society. 11, 4, p. 321-340 20 p.

Developing Nursing Practice: a counselling approach to delivering post diagnostic dementia support

Wilkinson, H., 2009, Unknown Publisher.

Good Ideas for day carers and respite carers who provide support to older people in their own homes

Wilkinson, H., 2009, Unknown Publisher.

Guidance for Inspectors: Night Time Care Prompts Care Homes

Working Group, C. C. & Wilkinson, H., 2009, 10 p. Produced for Care Commission Working Group.

Night time care checklist for care home inspectors

Wilkinson, H., 2009, Produced for Care Commission Working Group.

Responding to the pain experiences of people with a learning disability and dementia

Wilkinson, H., Kerr, D. & Cunningham, C., 2009, In : Learning Disability Today.

Utviklingshemning og aldring: en lærebok Tønsberg, Forlaget Aldring og helse

Wilkinson, H., 2009, Utviklingshemning og aldring: en lærebok.

Hearing the voices in the policy-practice-research nexus: the importance of the knowledge exchange process for people with dementia

Wilkinson, H. & Weaks, D., Nov 2008, In : Dementia. 7, 4, p. 427-431 5 p.

INTERNATIONAL SURVEY OF ALZHEIMER'S ORGANIZATIONS RELATIVE TO INTELLECTUAL DISABILITIES

Janicki, M. & Wilkinson, H., Oct 2008, In : The Gerontologist. 48, p. 639-639 1 p.

SUPPORTING BETTER NIGHT TIME CARE IN RESIDENTIAL SETTINGS

Wilkinson, H., Oct 2008, In : The Gerontologist. 48, p. 735-735 1 p.

Supporting Older People in Care Homes at Night

Kerr, D., Wilkinson, H. & Cunningham, C., Jul 2008, Joseph Rowntree Foundation. 92 p.

Where should People with Dementia Live? Using the Views of Service Users to Inform Models of Care

Forbat, L. & Wilkinson, H., Mar 2008, In : British Journal of Learning Disabilities. 36, 1, p. 6-12 7 p.

Supporting Older People in Care Homes at Night

Kerr, D., Wilkinson, H. & Cunningham, C., 2008, In : Journal of Dementia Care. 16, 4, p. 35-88

Make it Easy on Yourself! Advice to Researchers from Someone with Dementia on Being Interviewed

McKillop, J. & Wilkinson, H., 2004, In : Dementia. 3, 2, p. 117-125

Projects

ADULTS WITH INCAPACITY

Wilkinson, H. & Wasoff, F.

UK central government bodies/local authorities, health and hospital authorities

10/07/039/12/03

ASSESSMENT SERVICE PROVISION IN SCOTLAND

Wilkinson, H.

UK-based charities

1/11/0231/08/03

An international collaboration to explore person centered approaches to dementia and the role of relationships

Wilkinson, H.

ESRC

1/10/1230/03/15

BOLD: Bringing out Leadership in Dementia

Wilkinson, H.

UK-based charities

1/04/1931/03/24

CARER PARTICIPATION

Wilkinson, H.

UK-based charities

1/07/0331/03/04

Carnegie Forum for Dementia Research in Scotland - Website Project

Wilkinson, H.

UK-based charities

1/07/0230/06/03

Dementia Research and Care Seminar Group

Wilkinson, H.

ESRC

1/09/0231/05/03

Development and Evaluation of Strategies to improve sedation quality in intensive care (DESIST STUDY)

Walsh, T. & Wilkinson, H.

UK central government bodies/local authorities, health and hospital authorities

1/09/1131/12/14

Engaging with Involuntary Service Users

Smith, M., Cree, V. & Wilkinson, H.

ESRC

4/02/133/12/13

Engaging with involuntary service users in social work

Wilkinson, H., Cree, V., Hunter, S., McGhee, J., Smith, M., Tisdall, K. & Whyte CBE, B.

ESRC

1/11/0928/02/11

Exploring the potential for counselling people with dementia

Wilkinson, H.

UK central government bodies/local authorities, health and hospital authorities

1/03/2030/09/20

Impact of Learning Disability Liaison

Wilkinson, H.

UK central government bodies/local authorities, health and hospital authorities

1/06/0730/07/10

Improving evidence om the hleath and care for older people

Morton, S. & Wilkinson, H.

ESRC

1/05/1231/10/13

Inclusive Symbols for People Living with Dementia

Wilkinson, H.

UK-based charities

1/04/1631/08/16

KEALTHBRIDGE:National Evaluation of dementia advisors and peer support networks

Wilkinson, H.

UK central government bodies/local authorities, health and hospital authorities

1/04/1030/09/12

Knowledge exchange on dementia activism: Strengthening the Japan-UK Dementia Alliance

Wilkinson, H.

UK-based charities

1/01/1731/05/17

LEARNING DISABILITIES & DEMENTIA

Wilkinson, H.

UK-based charities

1/08/0330/05/07

ARLN funded: Methodological Dialogue in Dementia Design: responding to the call for dementia- friendly environments through co-produced design

Verhoeven, A. & Wilkinson, H.

1/09/141/07/15

Needing to ¿¿¿go¿¿¿ when you are on the go - Transport and Toilets: Finding solutions which maximize the availability of accessible toilets when travelling

Wilkinson, H.

UK-based charities

1/04/1830/09/19

No Title (R)

Wilkinson, H. & Wasoff, F.

UK central government bodies/local authorities, health and hospital authorities

7/07/0330/11/04

Pain management needs of older people who have learning disabilities and dementia

Wilkinson, H.

UK-based charities

1/07/0431/01/07

Pam Ramsay's Award : Engaging Patients in Understanding and Improving the Critical Illness Journey (EPIC)

Wilkinson, H.

UK-based charities

1/04/137/09/16

Pam Ramsay's Award : Engaging Patients in Understanding and Improving the Critical Illness Journey (EPIC)

Wilkinson, H.

UK central government bodies/local authorities, health and hospital authorities

1/04/1331/03/15

Personal Fellowship - Dr H Wilkinson

Wilkinson, H.

UK-based charities

1/07/0231/12/03

Pilot evaluation of the effectiveness of the DisDAT tool on the assessment od management of 'distress' in patients with a learning disability receiving general hospital care

Wilkinson, H.

UK-based charities

1/10/0531/05/07

Practice Development Pack: Supporting staff working with people with learning disability and dementia

Wilkinson, H.

UK-based charities

1/08/0931/08/11

RELinQuiSH

Kean, S., Forbes, J., Salisbury, L. & Wilkinson, H.

UK central government bodies/local authorities, health and hospital authorities

1/11/1031/10/12

SUPPORTING STAFF WORKING WITH

Wilkinson, H.

UK-based charities

1/08/0930/06/10

Showing the Way: Developing an evaluation framework for signage for people living with dementia

Keyes, S. & Wilkinson, H.

Other

1/08/1610/12/16

Staff awareness for care workers in Dementia

Wilkinson, H.

UK-based charities

1/03/0528/02/06

Supporting Care Homes Residents with Dementia at night

Wilkinson, H.

UK-based charities

1/04/0631/08/09

Supporting Derek - second edition

Wilkinson, H.

UK-based charities

1/10/1731/07/18

Supporting people to age - appr envir.

Wilkinson, H.

UK-based charities

1/10/0231/12/03

The Advanced Care Reseach Centre

Wilkinson, H. & Chan, S.

UK industry, commerce and public corporations

1/04/2031/03/21

The ethics of undertaking ethnographic research with people who have dementia and who lack capacity.

Wilkinson, H., Maclaren, J. & Nelson, M.

UK central government bodies/local authorities, health and hospital authorities

1/03/1730/11/17

Theatre and Arts in Health and Society: establishing a Theatre in Health and Society Cluster, rooted in an international collaboration in Theatre as a transformative tool in research, teaching, learning and public engagement.

Wilkinson, H. & Keyes, S.

1/08/1331/07/14

US-Scotland Collaboration on Curriculum design and sharing: People with intellectual disabilities and dementia

Wilkinson, H.

Non-EU-based charities

1/07/0230/06/03

Understanding the role of volunteering in the future of dementia care

Wilkinson, H.

UK-based charities

1/02/2031/01/23

Using knowledge exchange to bring about culture change in children and families

Wilkinson, H.

ESRC

4/02/133/12/13

WORKSHOP

Wilkinson, H.

UK-based charities

1/06/0331/12/03

the RECOVER study

Walsh, T., Forbes, J., Murray, G. & Wilkinson, H.

UK central government bodies/local authorities, health and hospital authorities

1/08/1031/07/13