Edinburgh Research Explorer

'Genetic exceptionalism' and precautionary politics: Regulating for uncertainty in Britain's genetics and insurance policy process

Research output: Contribution to journalArticlepeer-review

Original languageEnglish
Pages (from-to)585-600
Number of pages16
JournalScience and Public Policy
Volume33
Issue number8
Publication statusPublished - Oct 2006

Abstract

This article critically investigates the role 'genetic exceptionalism' and precautionary politics played in the British policy process that resulted in a moratorium on insurers' rights to use certain types of genetic information in underwriting decisions. The article evaluates the recommendations of key advisory committees and regulatory bodies as they tried to construct fair and pragmatic policies in a context of great social, commercial and technological uncertainty. It suggests that in trying to meet the needs of political expediency - responding to broader concern that access to life assurance might be significantly restricted in an age of increased genetic knowledge - policy-makers and regulators marginalised evidence that negated fears of an emerging genetic underclass by adopting a precautionary approach to genetic risk and exclusion.

ID: 22112692